Investigating the impact of Covid-19 on ME – Survey

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Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that Covid-19 has on people with ME.

We are working in collaboration with Action for ME to gather evidence on the impact of Covid-19 on our community. We have heard many stories from people with ME whose health has been affected by Covid-19 and decided that it is important to reach out to the wider community through this survey. The evidence gathered from the survey will be used, along with personal stories, to help our campaign to make the government aware of the impact that Covid-19 is having on people with ME and the need to provide effective support to those affected.

The survey aims to explore if ME symptoms are affected by Covid-19, how long any change in symptoms lasts and whether cognitive and/or physical functioning changes. We also ask about new symptoms and how long these have lasted. Finally, we look at the impact Covid-19 has had on functioning and whether it has led to increased use of health care services. 

Who can take part?

The survey is for people with ME who have had Covid-19 symptoms and/or been diagnosed with Covid-19. You do not have to be a UK resident to take part. If you are not able to complete the survey yourself, please ask a carer to do so on your behalf. All responses will be anonymous.

If you have ME and have had Covid-19 please help us by taking part in the survey. The more people who take part the greater the weight of evidence we will have to call for effective support and care!

Please complete the survey as soon as you can. When testing the survey, all respondents said it took under 5 minutes to do.

If you’ve got any questions or would like more information please email us on [email protected]

Take the survey here:

Thank you for considering taking part in this survey.

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1 thought on “Investigating the impact of Covid-19 on ME – Survey”

  1. Janice Kuharski

    Getting ready to send a flyer and email to primary care physician(s) regarding the 2021 ME/CFS International Awareness Week Webinar course with Dr. David Kaufman offering physicians a CME credit after viewing and taking the post-video quiz. But I could find nothing in the flyer or the presenter/ information sign up pages which gives the dates or times when the webinar will take place. Perhaps I’ve missed it. Just thought I’d include a brief summary–who, what, when–accompanying the flyer. So, if you could provide the dates, times when the video can be viewed, please email it to [email protected] or DM me at @kuharskijm1. Or maybe do an #MEACTION Twitter post with the info that I can post to followers. This is a great opportunity which will create a valuable introduction for those with little background knowledge about ME/CFS. Particularly useful now that we are seeing more cases of Long Covid. Thanks!

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