Investigating the impact of Covid-19 on ME – Survey

Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that Covid-19 has on people with ME.

We are working in collaboration with Action for ME to gather evidence on the impact of Covid-19 on our community. We have heard many stories from people with ME whose health has been affected by Covid-19 and decided that it is important to reach out to the wider community through this survey. The evidence gathered from the survey will be used, along with personal stories, to help our campaign to make the government aware of the impact that Covid-19 is having on people with ME and the need to provide effective support to those affected.

The survey aims to explore if ME symptoms are affected by Covid-19, how long any change in symptoms lasts and whether cognitive and/or physical functioning changes. We also ask about new symptoms and how long these have lasted. Finally, we look at the impact Covid-19 has had on functioning and whether it has led to increased use of health care services. 

Who can take part?

The survey is for people with ME who have had Covid-19 symptoms and/or been diagnosed with Covid-19. You do not have to be a UK resident to take part. If you are not able to complete the survey yourself, please ask a carer to do so on your behalf. All responses will be anonymous.

If you have ME and have had Covid-19 please help us by taking part in the survey. The more people who take part the greater the weight of evidence we will have to call for effective support and care!

Please complete the survey as soon as you can. When testing the survey, all respondents said it took under 5 minutes to do.

If you’ve got any questions or would like more information please email us on [email protected]

Take the survey here:

Thank you for considering taking part in this survey.

Facebook
Twitter
WhatsApp
Email

1 thought on “Investigating the impact of Covid-19 on ME – Survey”

  1. Janice Kuharski

    Getting ready to send a flyer and email to primary care physician(s) regarding the 2021 ME/CFS International Awareness Week Webinar course with Dr. David Kaufman offering physicians a CME credit after viewing and taking the post-video quiz. But I could find nothing in the flyer or the presenter/ information sign up pages which gives the dates or times when the webinar will take place. Perhaps I’ve missed it. Just thought I’d include a brief summary–who, what, when–accompanying the flyer. So, if you could provide the dates, times when the video can be viewed, please email it to [email protected] or DM me at @kuharskijm1. Or maybe do an #MEACTION Twitter post with the info that I can post to followers. This is a great opportunity which will create a valuable introduction for those with little background knowledge about ME/CFS. Particularly useful now that we are seeing more cases of Long Covid. Thanks!

Comments are closed.

Latest News

a dark plum square image with a brownish/purple square in the middle. The #MEAction logo is at the top center. the words: black ME voices: q&a with Teona Studemire are in a fancy white font. Black history month is at the bottom of the square surrounded by two black stars.

 Black ME Voices: Q&A with Teona Studemire

With it being Black History Month, it was crucial to me to make sure we spotlighted someone from the ME/CFS and Long COVID community who is Black. Being Black and disabled is an entirely different experience. Not only do we deal with ableism, but we also deal with racism, especially medical racism. According to the

Read More »
blue rectangle image with the NIH logo in the top left hand corner. the words: NIH MECFS Research Roadmap Update Public comments open until March 8th appear in the middle of the image. the meaction logo is in the bottom right hand corner.

NIH ME/CFS Research Roadmap Update–Public Comment Period Now Open

The NIH ME/CFS Research Roadmap public comment period is open now with a deadline of March 8th.  #MEAction is a member of the ME/CFS Research Roadmap Working Group and for the past several months we have been advocating on behalf of this community within this group. Our Executive Director, Laurie Jones, served on the nervous

Read More »
a rectangle image with multiple small hearts in the corners. The words, Valentine's Day Interview with Jamison Hill and Book Promotion. The cover of the book is next to the words. The #MEAction logo at the bottom.

Valentine’s Day Interview with Jamison Hill & Book Promotion

We are excited to bring you a special Valentine’s Day promotion of Jamison Hill’s most recent book, Something’s Wrong with Micah.  #MEAction had the pleasure of having a Twitter chat with Jamison when his memoir When Force Meets Fate came out. We now get to bring this Q&A about his newest book to you. Jamison

Read More »
Scroll to Top