UK press team hits again with Mail Online article

#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise. It sympathises with ME patients who were dismissed when exercise made them worse. 

The article came about when freelance journalist Jerome Burne got in touch with our UK press team after we sent out our press release about NICE’s draft ME/CFS guidelines last November. Our UK press team then worked extensively with Jerome providing background information leading to the article in the Daily Mail. We applaud their work!

If you haven’t already, read the Daily Mail article.

Jerome had previously written extensively about graded exercise therapy for ME and the way people with ME and their organisations were treated by NICE . 

In a post on his own blog, he goes into greater detail about how people with ME have fought against stigma and power to access appropriate healthcare.

Read “The long march by patients to prove that the official treatment for ME/CFS was wrong and damaging” by Jerome Burne.

Our UK press team is made up entirely of volunteers, supported by staff in the US, and we’re making a real difference. If you want to be part of a small but vibrant team of volunteers get in touch today!
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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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