UK press team hits again with Mail Online article

#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise. It sympathises with ME patients who were dismissed when exercise made them worse. 

The article came about when freelance journalist Jerome Burne got in touch with our UK press team after we sent out our press release about NICE’s draft ME/CFS guidelines last November. Our UK press team then worked extensively with Jerome providing background information leading to the article in the Daily Mail. We applaud their work!

If you haven’t already, read the Daily Mail article.

Jerome had previously written extensively about graded exercise therapy for ME and the way people with ME and their organisations were treated by NICE . 

In a post on his own blog, he goes into greater detail about how people with ME have fought against stigma and power to access appropriate healthcare.

Read “The long march by patients to prove that the official treatment for ME/CFS was wrong and damaging” by Jerome Burne.

Our UK press team is made up entirely of volunteers, supported by staff in the US, and we’re making a real difference. If you want to be part of a small but vibrant team of volunteers get in touch today!
Facebook
Twitter
WhatsApp
Email

Latest News

a collection of millionsmisisng pictures featuring people protesting over the years in red shirts and with protest signs. white dashses connect the photos. the words words "the Story of the #MillionsMissing" is in white font in the top lefthand corner with the #MEAction logo there. The words "Coming Soon" is handwriting font is in the top righthand corner.

“#MillionsMissing is our drumbeat”–Preview Party 9/24

RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th, at 12 pm PT/ 3 pm ET/ 8 pm BST! RSVP & Get Zoom Link Here We have always had to be creative in telling Our Story – the story of M.E. – to the world

Read More »

JNNP to publish edited rapid response by MEAction UK.

MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to  ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We

Read More »