#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise. It sympathises with ME patients who were dismissed when exercise made them worse.
The article came about when freelance journalist Jerome Burne got in touch with our UK press team after we sent out our press release about NICE’s draft ME/CFS guidelines last November. Our UK press team then worked extensively with Jerome providing background information leading to the article in the Daily Mail. We applaud their work!
If you haven’t already, read the Daily Mail article.
Jerome had previously written extensively about graded exercise therapy for ME and the way people with ME and their organisations were treated by NICE .
In a post on his own blog, he goes into greater detail about how people with ME have fought against stigma and power to access appropriate healthcare.
Read “The long march by patients to prove that the official treatment for ME/CFS was wrong and damaging” by Jerome Burne.