Covid-19 has worsened our ME, report survey respondents

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Read the first findings from the survey #MEAction UK and #MEAction Scotland are conducting with Action for ME to gather evidence of the impact of Covid-19 on people with ME.

The aim of the survey is to provide data that can be used, along with personal stories, to help our campaign to make the government aware of the impact that Covid-19 is having on people with ME and the need to provide effective support to those affected. 

The initial findings, based on the first 220 responses, show clearly that Covid-19 had a significant impact on respondents. Over three quarters of the respondents said that Covid-19 made their ME symptoms worse. This impact appears to be long lasting, with over two thirds of respondents reporting that the worsening in symptoms has lasted more than 6 months and have still not resolved.  Not only have existing symptoms worsened, but over 70% of respondents reported that they had developed new symptoms, including  shortness of breath, chest pain and dizziness. 

We believe these results provide evidence that people with ME are vulnerable to Covid-19 and should be considered for vaccination as part of the priority group for those in at-risk groups. We have prepared a letter for people with ME who wish to receive the vaccine to send to their GPs highlighting this new evidence of the harm done by Covid-19.

The survey was launched on 22 March 2021 and will remain open for responses over the next few months. If you have ME and have had Covid-19 please help us by taking part. The more people who take part the greater the weight of evidence we will have to call for effective support and care.

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