ME/CFS International Family Impact Study

Share on facebook
Share on twitter
Share on email

Who: Dr. Nina Muirhead and the Study Team at Cardiff University, United Kingdom have developed a survey with two questionnaires, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return.

What: An international research study, looking at the impact of ME/CFS on the quality of life of both patients and their family members. People with ME/CFS piloting the survey found each questionnaire only took about 5 minutes to complete.

When: Closing date is March 31st 2021

Where: https://redcap.link/MECFSFamilyImpactStudy

If you have started the study but lost the link to return please e-mail [email protected] to be given your unique access code (please note this may take a few days).

 

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

In Memory of Dr. Ronald G. Tompkins MD, ScD

Mourning the loss of Dr. Ron Tompkins

Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding Director of the Center for

Read More »
National Institutes of Health campus buildings from above

NIH Long COVID research lacks clear plan to identify and track ME/CFS

MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular importance because a sizable fraction

Read More »

The Last Two Years Changed the World…

What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms.  It’s no exaggeration to say that 2020 and 2021 changed the world – and the world of chronic,

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top