Where Does Your Donation Go?

Do you ever wonder where your money goes when donating to your favorite charity? We certainly do!

Why?

Because we want to make sure that every gift we receive generates the greatest impact in our collective fight for research, medical education, and public recognition of myalgic encephalomyelitis/chronic fatigue syndrome.

This is why we wanted to share with you a few figures to illustrate how your generosity has fueled our fight, and how your continued support will help us achieve so much more! 

Over the past few months, our mighty staff and volunteer teams have worked for hundreds of hours on…

  • Long COVID and ME Press Briefing: We held a press briefing featuring a panel of experts who were uniquely positioned to speak on how Long COVID was being informed by ME research. Journalists attended from over 15 domestic and international press outlets.
Briefing design, expert engagement, media outreach, and Zoom shenanigans………70 HOURS
  • #MillionsMissing: 255 attended live from 9 countries for #MEAction’s 2021 Global #MillionsMissing event, including over 53 artists who participated in our first-ever Artists Salon plus over 500,000 far-reaching social media views.
Event promotion, speaker coordination, execution, and post-show recovery………… 420 HOURS
  • The Chronic Illness Survey Adventure: Our massive survey aimed at providing clinicians and researchers with key data that could help generate better care for and quicker diagnoses of ME and other similar chronic diseases. 
Survey design, development, launch, and creation of cool game-like imagery………… 1,500 HOURS
  • Severe ME Artists Project: 180 people with severe ME submitted over 300 photos, drawings, writing, and videos of their work for Severe ME Day, a day for people with severe ME to be seen and to celebrate their beautiful artwork with the larger community. 
Video and gallery creation, and awe over the artistic beauty of it all……………………… 50 HOURS
  • CDC’s Flawed Evidence Review: Our 40-page response to the CDC’s flawed systematic evidence review on ME treatments – which garnered over 7,200 signatures! – concluded that the controversial and widely-disputed interventions of graded exercise therapy and cognitive behavioral therapy were likely beneficial in treating ME. 
Town halls, evidence analysis, lots of writing, and frustration at fighting this………… 750 HOURS

With so many ways for us to leverage your generous gifts into powerful and impactful programming, we wanted to share more about the different ways you can continue fighting by our side:

  • It’s so simple: You can donate HERE!
  • It’s so cool: You can now give the gift of cryptocurrency HERE!
  • It’s so fun: You can help #MEAction win a grant by voting for us at My Giving Circle HERE!

Whatever you choose, please know how much your confidence in our work means to us, and that we will shepherd your gifts wisely and with great care, always.

You have our sincerest gratitude.

In solidarity,
All of us at #MEAction

Facebook
Twitter
WhatsApp
Email

Latest News

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top