UK Parliamentary Group to discuss new ME/CFS guideline

The next meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG on ME) will take place from 2 – 3 pm on 24 November 2021.

Email your MP asking them to attend, and help to ensure the new ME/CFS guideline is implemented.

Find their contact details at: https://members.parliament.uk/FindYourMP

This meeting will focus on the new National Institute for Health and Care Excellence (NICE) guideline on ME and the future of ME medical care.

Three expert guest speakers will address the APPG and answer questions:

  • Dr Paul Chrisp, Director of the NICE Centre for Guidelines
  • Dr Peter Barry, Chair of the NICE ME/CFS Guideline Committee
  • Sonya Chowdhury, Chief Executive of Action for ME

This meeting will be an excellent opportunity for MPs and Peers to discuss the new NICE guideline which is expected to be transformational for ME patients across the UK due to the removal of support for damaging treatments such as graded exercise therapy (GET).

Discussion points for the meeting will include the guideline review process, the delay to the release of the guideline, the recommendations of the new guideline, and next steps for guideline implementation.

The overall aim of the meeting will be to raise awareness amongst MPs and Peers of the issues facing people with ME in the UK, in line with the APPG purpose which is to seek to improve health, social care, education and employment opportunities for ME sufferers and encourage biomedical research into the cause and treatment of ME.

If an MP or peer wishes to attend, they can contact Carol Monaghan MP, Chair of the APPG on ME, by email at [email protected]

Carol Monaghan will be able to provide further information on the meeting and zoom details.

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