Forward-ME : RESPONSE TO ‘PAUSE’ IN NEW NICE GUIDELINES

As part of the coalition Forward-ME, MEAction UK is pleased to share below, the latest statement from the group regarding this week’s pause by NICE of new Guideline publication.



ME CHARITIES BAFFLED BY DELAY TO NICE GUIDELINE

Statement on the delay to publication of the NICE Guidelines on diagnosis and management of ME

On Behalf of: Forward ME, Action for ME, ME Association, Doctors for ME, ME Research UK.

We are shocked and hugely disappointed to hear that the long-awaited NICE guidelines have been unexpectedly delayed at the last minute.

The new NICE guidelines bring clinical practice up to date with current scientific knowledge regarding ME**. Delays will hold-off still further the desperately needed improvements to patient care.

Many medical professionals, researchers and patient representatives have spent 3 years diligently reviewing and assessing the evidence.

The document has been approved by the committee and should be published.

The document  removes support for therapies driven by outdated views regarding treatment for ME which are no longer supported by the science. We understand these new guidelines may take time to become accepted by elements of the medical community, but they should not be delayed.

No minority party should be able to undermine the careful scientific consensus established by the NICE committee and the rigorous work that has been undertaken in good faith.

We urge NICE to publish this important work without delay, so doctors can get on and support patients with this often devastating disease.

Quote: 

Ms Nina Muirhead, head of medical education, Doctors for ME said: “Doctors are in desperate need of improved support in how to care for patients, delaying that prolongs unscientific approaches which have no place in our medical community”.

Said Sonya Chowdhury of Action for ME: “We are in the dark about this. The NICE committee has worked hard to produce balanced guidelines which reflect science and best medical practise. Nobody should be able to undermine that.”

NOTE:  **also know as Chronic fatigue syndrome

— — — END   —   —   — 

Facebook
Twitter
WhatsApp
Email

Latest News

a light orange rectangle with a burnt orange outline. in the box, there are orange flag garlands hanging in both top corners with orange confetti in the middle and at the top. in the bottom corners fall leaves. in the middle of the box the word, "OUR BOLDEST THANKS" in burnt orange. the #MEAction logo at the bottom.

#MEAction Shares Our Thanks for Your BOLD ACTIONS

During this time of thankfulness and gratitude, #MEAction staff wants to share what BOLD ACTIONS we are thankful our volunteers and community have taken throughout the year. We thought we could reflect together on all that we have accomplished this year and how every single one of us is important in this powerful community. A

Read More »
red rectangle. on the left side of the rectangle an image of a desktop computer that features the mepedia home page. the words "Live Now!" are stacked four times and fall behind the desktop image. on the right side of the rectangle, the words " check out the updated, expanded, and revamped mepedia! then there is the #mepedia logo with the words a project of #MEAction at the bottom.

Check out the Updated, Expanded, Revamped MEpedia!

Great news! About six months ago, we began a project to update, expand, and revamp MEpedia. Due to a generous grant, we were able to create a project scope, hire respected experts in accessibility and MediaWiki development, and make several important changes to MEpedia! Visit the New MEpedia MEpedia is a vital resource MEpedia is one of the most utilized resources for researchers,

Read More »
Graphic of yellow canary over black and white photo of a coal mine. Text reads "Canary Corps"

CANARY CORPS – New Grassroots Program Coming Soon

I’ve got exciting news to share! In early 2024, #MEAction will launch a new grassroots, peer-run program in the United States to help people with ME, Long COVID, and other infection-associated chronic illnesses find and access local services and support for people with disabilities. This will be an innovative and radical program that is run

Read More »