Cancelled: Chat to NICE ME/CFS guideline committee members

Cancelled

Due to NICE delaying publication of the final guideline, we are cancelling this event, and will aim to reschedule for when the final guideline is published. We will email all who have RSVPed with details when we are able to schedule this.

We understand this is a distressing time for community members, and stand in solidarity with you all.

If you need somewhere to discuss what is happening we recommend joining the discussion on Science for ME. There is also a members only thread for support during this time.

We also have a page of crisis resources for those in need of someone to speak to or further information.

After too many years of waiting, the final version of the new ME/CFS guideline developed by NICE will be published on the 18th August 2021!

On Tuesday 24th August at 5pm, we’re holding a community Q&A, and will be joined by two of the NICE committee members, who have spent almost 3 years working on this guideline.

We’re excited to welcome:

  • Adam Lowe, lay member and person with ME
  • Caroline Kingdon, Research Nurse and Research Fellow working with the UK ME/CFS Biobank

This is your chance to delve into more depth around the guideline, ask questions about the processes that were undertaken, or find out what these committee members see as the most noteworthy recommendations this guideline makes. You could ask how they see care for people with ME changing, or what they think the next steps are now the guideline is published.

They can’t tell us what other committee members said during meetings, but they will answer all your questions to the best of their ability.

You will be able to ask questions by putting your hand up and speaking, typing in the chat box, or sending us a question in advance to [email protected]  

There are only 100 spaces to attend so register now!

We will broadcast it live to Facebook, so that others can watch too. And we will be recording it so that those who need to can watch it at their own pace.

The session will be facilitated by Sian Leary from #MEAction UK and Karima Rahman from #MEAction Scotland, and held on Bluejeans – our video conferencing software. You can access this on all devices, but will need to download the app if you are on a tablet or mobile.

We look forward to seeing you there and getting some fascinating insight from these two committee members.

 

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