New Featured Pieces from #MEAction’s Writing from our ME Lives Group

#MEAction is excited to share new pieces of work from the Writing From Our ME Lives writing group. Click on the buttons below to view their writing! Hope you enjoy their work. 

If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST. Check out the calendar posting here

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Blue square image with starbursts in the corners. the words, submit long covid drug recommendations to recover -tlc! are in the middle of the image, surrounded by thin white lines. the meaction logo is at the top of the image.

Submit Long COVID Drug Recommendations to RECOVER-TLC!

Last month, RECOVER TLC met at NIH headquarters in Bethesda. The goal was to initiate a drug development strategy for Long COVID clinical trials. Now, RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial!  Anyone can submit a therapeutic for consideration

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The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward

The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers

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greyish rectangle image with the words: #MEAction is Excited to Announce: Pillow Writers Anthology Issue 1: Near-Life Experiences. In a small grey square the words Get Your Copy Today! with a black line underneath. On the right hand side of the square is the image of the book cover that has a water color of flowers. the #meaction logo is at the bottom of the image.

Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!

The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This inaugural issue features poems, stories, and essays by 17 writers who call themselves the Pillow Writers. The Pillow Writers are an international group of writers living with the neuro-immune diseases of myalgic encephalomyelitis (ME) and Long

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