Connecting Black People with ME and/or long Covid in the UK

Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the aim of improving our wellbeing. 

Group members will be invited to share their skills, and to lead parts of the group if they feel able to. 

Darren says: “There is no pressure to do so though; contribute as much or as little as you are comfortable and able to.”

Darren’s diagnosis of ME took 13 years to come about after suffering from Glandular Fever at the end of 2000, at age 15, and presenting symptoms of ME in 2001.

Diagnosis was crucial for Darren in dealing with the physical and mental impacts of the condition. Getting support during COVID-19 was heavily delayed, which exacerbated his symptoms during an already difficult period.

These findings and experiences resonated and motivated him to find other Black and Black-mixed people living in the UK with ME to hear their stories around diagnosis and treatment and build a community of support for one another. 

This is especially important in this era of COVID-19 where it has been widely reported that people from minority ethnic communities have been disproportionately affected and with Long Covid patients set to add to the 250,000+ people living with ME in the UK.

Facebook
Twitter
WhatsApp
Email

Latest News

Image is a sky blue rectangle, with an image of the #MEAction Maryland's logo that has the words Maryland State Chapter over an image of a lighthouse. On the righthand side if the image are the words, Join #MEAction's Marylans's #HelpMESenator Campaign in black font.

Join #MEAction Maryland’s #HelpMESenator Campaign

We are writing this article to share some exciting news! On Tuesday, September 26, ME advocates delivered copies of the book, The Puzzle Solver, by Tracie White with Ronald W. Davis, PhD, along with information about ME and Long Covid to Senators on the Hill. The books were donated by an individual living with severe ME/CFS in an effort to raise

Read More »
a collection of millionsmisisng pictures featuring people protesting over the years in red shirts and with protest signs. white dashses connect the photos. the words words "the Story of the #MillionsMissing" is in white font in the top lefthand corner with the #MEAction logo there. The words "Coming Soon" is handwriting font is in the top righthand corner.

“#MillionsMissing is our drumbeat”–Preview Party 9/24

RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th, at 12 pm PT/ 3 pm ET/ 8 pm BST! RSVP & Get Zoom Link Here We have always had to be creative in telling Our Story – the story of M.E. – to the world

Read More »

JNNP to publish edited rapid response by MEAction UK.

MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to  ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We

Read More »