Ron Davis Gets Standing Ovation

Ron Davis Gets Standing Ovation!
Very rare for a scientific presentation!
August 12 was an amazing day at OMF’s Community Symposium on the Molecular Basis of ME/CFS at Stanford University. The room was buzzing with positive energy. The researchers’ presentations were incredible and showed great insights into this disease. There were renowned scientists from all over the world, and from related fields revealing interesting new insights into ME/CFS research. Patients, caregivers, clinicians, and other researchers attending interacted with these scientists during breaks, lunch and an evening reception, and there was so much excitement and optimism in the room.
Here are some of the highlights from this amazing meeting (stay tuned for more!):
  • Additional comprehensive evidence that ME/CFS is a molecular disease was presented.(Yet another nail in the PACE coffin!)
  • Experts in metabolism, immunology, genomics, neurophysiology, electrical engineering and bioinformatics presented data.
  • We learned about innovative ways to find new pain drugs and saw elegant evidence of a clear connection between the immune system and the brain.
  • The scientists decided to continue as a “Working Group”, and are already planning multiple new ways to work together to facilitate and accelerate progress.
  • Nobel laureate Mario Capecchi noted how important patient participation is in studying any disease, and how impressed he was with the amount of ME/CFS patient participation!
  • In Ron Davis’ concluding remarks he stated that it is clear that what is missing is funding. He described ME/CFS as “a horribly underfunded disease”. Progress has been impressive despite the limited resources, but it is clear that more funding is needed to unravel this mystery and find treatments and a cure fast.
We need your help to accelerate the pace!
Every Donation of Every Size Brings Us Closer to A Cure.
 
Your past support has helped us to come this far, and now we need your help to expand our research efforts to the next level.
To End ME/CFS, the world is counting on brilliant researchers working collaboratively.
If you have ever thought to donate to our End ME/CFS project, NOW IS THE TIME! We need to keep the momentum going and leverage the expanding interest in finding a cure.
Sincerely,
 
Linda Tannenbaum
CEO/President
PS – Please forward this message to family and friends. Encourage them to join you in your support of OMF’s research for treatments and a cure.
Facebook
Twitter
WhatsApp
Email

Latest News

Happy Pride Month 2022 with rainbow ribbon in a heart

#MEAction Recognizes & Celebrates Pride Month 2022!

#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are a few responses: Kristina Osobka-Stier

Read More »
Severe ME Artist Project 2022 over swatches of gold paint

Severe ME Artists Project 2022!

#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their art work (whether it be

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top