Tell Congress "Don't defund ME/CFS!"

Author:

#MEAction

Tell Congress “Don’t defund ME/CFS!”

Last week, the House Appropriations Subcommittee on Labor-HHS finally released their vision of federal spending for Fiscal Year 2018 in H.R. 3358. We are disheartened to share that the accompanying committee report, again, zeroed out the $5.4 million line item for Chronic Fatigue Syndrome at the CDC’s Center for Emerging and Zoonotic Infectious Diseases. Now, we turn to the Senate to restore the funding for these critical research, education, and awareness programs.
To push back against this reduction, we’ve made it very easy. Send a message to your members of congress with the tool below:

Contact Congress!

Categories: Actions, Featured actions, Past actions, Politics, United States

2 thoughts on “Tell Congress "Don't defund ME/CFS!"”

lisa dettmer
August 20, 2017 at 7:01 pm

I tried to contact congress but the form didn’t work.. didn’t show a send button
what’s up ?

Reply
1. Ben HsuBorger
  August 21, 2017 at 2:26 pm
  
  You have to click the green “show me my officials” button to pull up the correct officials you want to communicate with before you can send the message from this page: https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00009. If you have further difficulties contact [email protected].
  
  Reply

Latest News

Sign petition To Fix ME/CFS tracking In US!

September 13, 2021 No Comments

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

NICE announces roundtable event to ensure implementation of ME/CFS guideline

August 27, 2021 No Comments

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

August 23, 2021 1 Comment

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM). Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign the code for chronic fatigue

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.