Did you see ME/CFS on PBS?

In 2015, Tom Camenzind appeared to have it all. He was an accomplished sophomore at Stanford University. But one day, things went horribly wrong. His health deteriorated rapidly and the diagnosis was heartbreaking: he had ME/CFS.
Today, Tom cannot speak. He is frozen in time, bedridden and unable to stand light, sound or touch. But if there is one tiny silver lining, it is that the world is about to learn of his plight – shedding light on this disease well beyond our ME/CFS community. Severely ill patients like Tom cannot speak for themselves; we are determined to speak to the world for them.
A national, televised program on Tom’s plight aired last week on the show, “The White House Chronicle,” with host Llewellyn King. Watch this new, half-hour program includes heartrending interviews with Tom’s parents and powerful comments from SMCI President Carol Head.

Facebook
Twitter
WhatsApp
Email

Latest News

Research Roadmap Petition

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Read More »
Red rectangle with the 2025 #millionsmissing logo, then the words Share this SOS Image on your socials. the meaction logo at the bottom right corner.

Share This SOS Image On Your Socials

Please help us spread the word! Share and interact with #MEAction’s social media (we are @meactnet) and share this amazing artwork (above ⬆️ ) and a message about #MillionsMissing with your own networks. Desktop: Download by right clicking on the image or clicking on the download icon in the bottom right corner of the image. Mobile:

Read More »
Scroll to Top