With the excitement and attention around the theatrical premiere of ‘Unrest’ in NYC this month now is the time to take ME advocacy and activism to a new level in New York. Over the past year there has been increasing progress at the state level.
Last fall a #MillionsMissing protest was held in front of the Health and Human Services New York office with prominent AIDS activists speaking out against the situation currently faced by people with ME in New York. In May of this year the New York State Health Commissioner sent a letter to over 85k medical providers in New York about ME. Then in June State Senator Brad Hoylman introduced a New York State Resolution on ME.
#MEAction has more behind-the-scenes plans for New York, but we can’t do it without your help. We need people with ME, their caregivers and allies, to come together to help New York lead the nation in addressing this public health crisis.
Join the New York #MEAction organizing meeting to get started!
Please join us for the first ever New York #MEAction organizing meeting. Saturday, October 7, 2017 from 1:00-3:00 pm. The purpose of the meeting is to form a coalition of people with ME and allies to organize New York actions, develop our strategy, and form a community! We need you there!
Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.