On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS! The letter was led by Representative Amodei from Reno and signed by Senators Catherine Cortez Masto and Dean Heller, and Representatives Jackie Rosen, Ruben Kihuen and Dina Titus.
The effort was led by Courtney Miller and the Solve ME/CFS Initiative in partnership with Bob Miller, Anita Patton and Annettte Whittemore. People with ME/CFS across Nevada stood together to bring the very first ME/CFS delegation letter.
Thank you to the many residents of Nevada who took action to make this possible. View the complete letter here.
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
January 24, 2025 – Cochrane Library has made the shocking decision to abandon an independent analysis of its 2019 review of exercise therapy for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) – and has altered the date of publication to make the review appear current when, in fact, its sources are 10 years old or