On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS! The letter was led by Representative Amodei from Reno and signed by Senators Catherine Cortez Masto and Dean Heller, and Representatives Jackie Rosen, Ruben Kihuen and Dina Titus.
The effort was led by Courtney Miller and the Solve ME/CFS Initiative in partnership with Bob Miller, Anita Patton and Annettte Whittemore. People with ME/CFS across Nevada stood together to bring the very first ME/CFS delegation letter.
Thank you to the many residents of Nevada who took action to make this possible. View the complete letter here.
Facets of ME: Temperature Dysregulation
June 23, 2022
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Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.
