On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS! The letter was led by Representative Amodei from Reno and signed by Senators Catherine Cortez Masto and Dean Heller, and Representatives Jackie Rosen, Ruben Kihuen and Dina Titus.
The effort was led by Courtney Miller and the Solve ME/CFS Initiative in partnership with Bob Miller, Anita Patton and Annettte Whittemore. People with ME/CFS across Nevada stood together to bring the very first ME/CFS delegation letter.
Thank you to the many residents of Nevada who took action to make this possible. View the complete letter here.
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the