On Friday, May 26th, New York State (NYS) Health Commissioner Dr. Howard Zucker emailed a letter regarding Myalgic Encephalomyelitis (ME) to eighty-five thousand physicians in NYS. In the letter he describes the illness, encourages physicians to consider ME as part of a differential diagnosis when evaluating patients with symptoms, and refers readers to Jen Brea’s TED Talk to learn more from a patient perspective. Additionally, he discusses the importance of taking patients seriously when presenting with problems and the harm that graded exercise therapy can cause to those living with this disease.
New York ME activist Terri Wilder said “I’m honored to live in state where my health commissioner recognizes ME as a serious public health issue and takes pro-active steps to educate medical providers about it. My hope is that New York physicians will read the letter and implement the information into practice, and that health commissioners around the country will follow in his footsteps by sending out their own letter to medical providers in their community.”
To read the letter in its entirety, go to: https://drive.google.com/file/d/0B37JHmPXER6JZkZRd0hIalA2bUE/view
Want to thank Dr. Zucker? Contact him via snail mail and social media!
“Dr. Zucker, Thank you for highlighting Myalgic Encephalomyelitis in your May letter to physicians in New York. Millions of people with ME are grateful to have you as a public health champion.” Then add anything else you wish. If you are a New York resident please state that.
Dr. Howard A. Zucker, M.D., J.D.
Commissioner, New York Department of Health
Empire State Plaza
Albany, NY 12237
1. Save Saturday, July 8th on your calendar. Join us for our next #MEAction activist webinar focusing on local activist strategies just like the NYS Health Commissioner’s letter. Stay tuned for additional details regarding time, speakers, and topics!
2. Contact your US State or Territorial Health Official about sending out their own ME letter to state medical providers. For a list of US state and territorial health officials, go to: http://www.astho.org/Directory/
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the