Reading matters. Let's hear it!

Listen to Marion Michell read her article.
The demise of my ability to read extensively is one of my greatest losses. I try, but pages petrify. A few paragraphs must do me now; some days a couple of lines. It’s an issue many #pwme wrestle with, and contributes to our sense of separation.
Fatigue often blurs vision, or turns text into ornament. Some of us struggle to process written language, others lie with curtains closed because they cannot bear the light. Whatever the pattern, it diminishes our ability to keep up with news reports, medical research, blog-posts, etc., and affects how we communicate with friends, family and health professionals. Confidence and competence are deeply undermined.
When we’re the slightest bit awake we ache with lust for learning, connection, a stake in the wider world; M.E. plays havoc with it all. I rely on an iPad reader to link me in a little online. The lack of enunciation, though, makes listening a chore. We need real, vibrant voices to allow more people access to the articles published here, to share summaries of new research, discussions, opinions, advocacy.

Please give audio-recording a go with the texts you submit (instructions below), or volunteer to read for someone else… This website is such a great resource – make it count for all!

Instructions on how to record audio using the Voice Record Pro app.

Marion Michell
@marjojo2004

Facebook
Twitter
WhatsApp
Email

7 thoughts on “Reading matters. Let's hear it!”

  1. Thanks so much, Li. Brief and concise is what I do, and can engage with… All the best to you too!

  2. Silvia Autenrieth

    Such a great idea to have the voice recordings. I would be most willing to contribute by recording speech versions of articles (to the degree time permits) to those who have trouble reading them. All the best to you and everybody else!

    1. Thanks so much, Silvia. You read Adriane Tillman’s M.E. conference summary brilliantly. A second person has now offered to record #MEAction articles. Great start!

      1. Great start, really, Marion. And a great idea. As I said: will be happy to do more!  Silvia 
        Von meinem Samsung Galaxy Smartphone gesendet.

  3. Marion this a really informative post – think I found you CIB thread. I have shared the link on PainPals regular feature Monday Magic – Inspiring Blogs for You! and pinned, Claire x

Comments are closed.

Latest News

Happy Pride Month 2022 with rainbow ribbon in a heart

#MEAction Recognizes & Celebrates Pride Month 2022!

#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are a few responses: Kristina Osobka-Stier

Read More »
Severe ME Artist Project 2022 over swatches of gold paint

Severe ME Artists Project 2022!

#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their art work (whether it be

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top