Back in February 2017, Senator Ed Markey (D-MA) publicly announced at a packed town hall meeting that he would advocate for ME. A few short months later, he did just that! His first act as an ME advocate was to sponsor a Congressional Briefing on Capitol Hill on May 18th. The briefing — which included speakers Carol Head and Dr. Zaher Nahle from SMCI and Jen Brea from MEAction — was a success, attended by dozens of people, including Congressional and NIH staffers. This briefing was part of a national effort organized by Solve ME/CFS Initiative and #MEAction, which included local, online, phone, and in-person advocacy efforts. Watch Markey’s fantastic opening remarks here: https://youtu.be/IT1gLfiFkjs
Let’s send some love — and a warm “thank you” — to Senator Markey for his ME advocacy.
Sign the group “thank you” card: http://www.groupcard.
You can sign the card up until May 30th. Perhaps include a photo of yourself or a few words about what it means to you to finally have a champion for ME in the U.S. Senate and on Capitol Hill.
- Twitter: @SenMarkey
- Facebook: www.facebook.com/
- Website “contact us” form: www.markey.senate.gov/
contact (zip code required, but non-Massachusetts residents can also use this form). Sample message: “Thank you for sponsoring the ME Congressional Briefing. Millions of disabled Americans with ME are grateful to have you as our champion on Capitol Hill.” Then add anything else you wish. If you are a Massachusetts resident please state that.
4 thoughts on “Thank Senator Markey for Sponsoring the Congressional ME Briefing”
Thank you for standing up for the forgotten and left behind. There are SO MANY misguided opinions about this illness. It may be the most devastating disease of this century that nobody has heard of. And if they had, they don’t understand it. Thank you from Orange County CA.
Thank you Senator Markey for being vocal regarding this dreadful illness. As we have endured much skeptisim and bad treatment for decades your efforts are greatly appreciated.
I live on the other side of the world in Australia and a politician here has also taken a stand. His name is Senator Scott Ludlam.
Thank you Senator Markley for becoming a public face for the voice of many who are missing and dying of this chronic neuroimmune illness which has little awareness and no cure or treatment. We are grateful for your help to fight for us. I am hopeful that Senator Kirsten Gillibrand (D-NY) will help you be an advocate for Myalgic Encephalomyelitis.
Hope Senator Markey can ask MA state to send letter to 100% of MD’s about ME Awareness, similar to NY State that sent 85,000 letters to every MD.
Also would help to send letter to all schools, nurses since ME/CFS is the most common chronic disease to lead to long absences from schools for both students and even more so the staff including teachers. One sure way to help make America great again is to make it healthier. This is the best ROI for Federal, state & philanthropic investments.
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