DePaul Fatigue Study: ME, CFS, MS, Lupus, and Cancer

Share on facebook
Share on twitter
Share on email

Participate in DePaul’s research study comparing ME and CFS with other illnesses

DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer to participate in a voluntary research study to determine which symptoms may be commonly experienced by individuals in multiple fatiguing illness groups, and which symptoms may be unique to each illness. Participation includes completion of a confidential online questionnaire, which takes approximately 45 minutes to complete.
Eligibility Criteria:

  • Adults at least 18 years of age
  • Must be able to read or speak English
  • Have a diagnosis of Multiple Sclerosis, Lupus Erythematosus, Cancer, Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome.

For more information on the study please view the Fatigue Study Flyer
*The study welcomes responses from patients with any of the above diagnoses and asks for your help reaching patients with MS, Lupus, and Cancer.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

5 thoughts on “DePaul Fatigue Study: ME, CFS, MS, Lupus, and Cancer”

  1. pLEASE CHANGE THE HEADER ON THIS SURVEY IF IT IS ONLY FOR MS LUPUS AND CANCER. I JUST WASTED ALOT OF PRECIOUS ENERGY I DID NOT REALLY HAVE ON THIS SURVEY AND HONESTLY AM ANNOYED.

    1. Hi J.L., we just got confirmation from the researchers that the study IS accepting participants with ME/CFS. They’re looking for more help getting participants with the other diseases but don’t worry, your submission was not wasted. Thank you for taking the time to participate and I apologize for the confusion!

  2. I have just spend a good 45 minutes completing this survey and though I felt some questions were relevant many (especially towards the end ) were not – if I have had this condition for such a long period of time I do not see the relevance of questions re changes in the last 4 weeks. Also asking an ME patent to concentrate on something like this for 45 minutes – get real. I have had ME for over 20 years now – failed to be diagnosed for that time by my GP and fobbed off by various practitioners as ‘just being a bit stressed’

  3. This survey is quite simple and should only take 20-25 minutes to complete. You can even stop at any point and return. Note that it is for people with ME/CFS, Lupus, Multiple Sclerosis, and any type of cancer so please forward it accordingly to other people. Dr. Leonard Jason has done an enormous amount of work toward a definition of ME/CFS and the study of fatigue and has published more than numerous papers. Your work won’t be for naught. Marcie Myers

  4. I hope the results go on to help ME/CFS sufferers in some way. I’ve had CFS for 19 years and there are more unanswered questions than answered unfortunately.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Choose your top ten ME/CFS research priorities – UK survey launched

Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted

Read More »

Statement from Forward-ME on NICE Roundtable

After NICE held its roundtable to discuss the new ME/CFS guideline, Forward-ME (which #MEAction UK is a member of) have produced the below statement. Clinician and Patient Support Confirmed for new NICE Guideline on ME/CFS. On Monday, Forward-ME and member charities attended a roundtable to review the new ‘NICE guideline on ME/CFS’ with representatives from

Read More »

Is NIH blowing another opportunity to advance ME/CFS research?

Be sure to attend the telebriefing by the Trans-NIH ME/CFS Working Group this Friday (10/22) at 3PM ET. The National Institutes of Health (NIH) has many questions to answer about its lack of tangible progress or strategic acceleration of medical research for people with ME. Read Our Questions for NIH ME/CFS research opportunity being missed

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top