Give your Patient Opinion (UK, IR & Aus)

Giving voice to opinions on health services via online forum

Many people diagnosed with ME or with chronic fatigue syndrome run into difficulties with the healthcare system, while some have great care which has improved their health. What could change for the better? Who can we tell? How do we know we have been heard?
In Australia, Ireland and the United Kingdom, consumer health groups are encouraging patients to write about their experiences – positive or negative – on Patient Opinion Australia,  Patient Opinion UK and Patient Opinion Ireland.  It is a feedback platform to help healthcare providers improve, change or know about the things you are happy with. They are independent, not-for-profit, charitable organisations. Health services pay a small subscription fee to Patient Opinion and this is how the service is funded.
“Patient Opinion was founded by Paul Hodgkin a GP in Sheffield, UK who wanted to make the wisdom of patients available to the NHS. The old ways of doing this – inviting a patient to sit on a working party or carrying out a survey – did not work very well so he devised Patient Opinion as a way for thousands of patients to share their experience, and help busy health service staff to improve.”
Honest conversations can happen here and you can read other peoples’ experiences and the health services’ response. You can search by hospital or clinic, by diagnosis or by postcode.
Patient Opinion say “we exist to help improve dialogue between patient and health service providers and to improve health services” so let’s tell them what we need!

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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