The Open Medicine Foundation’s (OMF) Severely Ill Patient Big Data study is now fully funded with $1 million in private research funding
Thanks to a groundswell of crowdfunding efforts and several generous donations by anonymous donors!
An anonymous donor gave $350,000 to help fill the gap in funding needed to begin this groundbreaking study. This donation followed quickly upon the momentum of a previous $500,000 donation that was made earlier this month, also by an anonymous donor. These funds make it possible for OMF to go forward with their severely ill patient study and expand the sample size, allowing for a more robust study. The Severely Ill Big Data study is Phase 1 of the End ME/CFS project for which the OMF is seeking to raise $5 million annually.
The announcement that the Severely Ill Patient Big Data study has been fully funded is especially good news for Ron W. Davis, PhD who serves as the Director of the OMF’s Scientific Advisory Board. Despite Dr. Davis’ track record and expertise in ME/CFS research, The National Institute of Health (NIH) has twice rejected his team’s proposals without even reaching the peer review stage.
Why is the severely ill patient study so important?
Very little research has been done in the bedbound, severely ill patients because they are hard to reach. By looking at the simple body fluids of the severely ill, we may discover distinctive biomarkers that have not been found in previous ME/CFS studies. By then testing these biomarkers in the less severely ill, we may discover an inexpensive and clinically useful diagnostic test.
“Hopefully, the more severely ill will have a stronger signal of what’s going wrong,” said Dr. Davis, OMF Scientific Advisory Board Director. “As a result, we won’t need as many patients.”
A big thank you to this anonymous donor and to all the angels who have supported ME research.