Ice Bucket Challenge funds breakthrough

One year on: how much did the ALS Ice Bucket achieve?

Around this time last year the ALS Ice Bucket Challenge campaign went ‘viral’. It raised more than $100 million for research into amyotrophic laterals sclerosis or Lou Gehrig’s Disease.

More than 17 million people uploaded their challenge videos to Facebook; these videos were watched by 440 million people a total of 10 billion times, according the ALS Association.

The ALS Ice Bucket Challenge money funded a research breakthrough, finding a protein in cells – TDP-43 – linked to ALS. Jonathan Ling and his team of researchers found that in 97% of ALS cases, TDP-43 wasn’t doing its job. Now they know this, they’ve begun work on new therapies to do TDP-43’s job for it. If successful, this can slow down  progression of the disease. Ling hopes to have therapies, based on his research, in clinical trials within the next three years. (via Upworthy)
Around 30,000 people in the USA have ALS, with an average age of 55 years at diagnosis. It is more common in men than in women.
If this has you thinking about the Chilli ME Challenge, here is the latest news on the $750,000 raised so far. Go and challenge a friend or family member to it, if you haven’t already!
What did you think of the Ice Bucket Challenge? Does this news encourage you to get involved in fund raising for ME?

Facebook
Twitter
WhatsApp
Email

Latest News

burnt red square. there is a quote bubble in the center of the image with the words: Take Action Today: Support Keeping Telehealth! Surrounding the bubble is a megaphone in the bottom left corder and lightning bolts in the top right corner. and starburst as well. the meaction logo in the bottom right corner.

Support Keeping Telehealth – Take Action Today!

Expanded telehealth is set to expire at the end of this year, December 31st!  Learn More #MEAction knows losing expanded telehealth will be a problem for many in our community and the wider disability community. Telemedicine increases access to care, improves health equity, and is more affordable than in-person care.  We are asking you to

Read More »

#MEAction Scotland volunteers in Scottish Parliament

Volunteers from #MEAction Scotland and Long Covid Scotland talked to over 60 MSPs (Members of the Scottish Parliament) at an Information Stall in the Scottish Parliament from 5th-7th November. Ben Macpherson MSP for Edinburgh Northern and Leith sponsored the stall on behalf of  #MEAction Scotland as we aimed to make MSPs aware of the desperate

Read More »
Scroll to Top