I am one of the 250,000 people in the UK suffering with CFS/ME.
The 2007 NICE guidelines need a full revision. Suggestions from these guidelines have reported to worsen the condition.
On top of this many parts of the UK do not even have a local hospital-based specialist in which GPs can refer them to.
A lot more funding for biomedical research is desperately needed from the government and shouldn’t be left largely to the charity sector.
Please help us to get the help that we so desperately need.
#MEAction UK will be sending a representative to the NICE roundtable discussion on the final ME/CFS guideline, and have had a pre-meeting with NICE to raise our concerns about the delay to publication.