I am one of the 250,000 people in the UK suffering with CFS/ME.
The 2007 NICE guidelines need a full revision. Suggestions from these guidelines have reported to worsen the condition.
On top of this many parts of the UK do not even have a local hospital-based specialist in which GPs can refer them to.
A lot more funding for biomedical research is desperately needed from the government and shouldn’t be left largely to the charity sector.
Please help us to get the help that we so desperately need.
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
January 24, 2025 – Cochrane Library has made the shocking decision to abandon an independent analysis of its 2019 review of exercise therapy for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) – and has altered the date of publication to make the review appear current when, in fact, its sources are 10 years old or