I am one of the 250,000 people in the UK suffering with CFS/ME.
The 2007 NICE guidelines need a full revision. Suggestions from these guidelines have reported to worsen the condition.
On top of this many parts of the UK do not even have a local hospital-based specialist in which GPs can refer them to.
A lot more funding for biomedical research is desperately needed from the government and shouldn’t be left largely to the charity sector.
Please help us to get the help that we so desperately need.

Pillow Writers en Español
#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers: Join us for our Pillow Writers En Español meetings! A place where ME/CFS/Long Covid patients are welcome to participate through writing. This #MEAction-sponsored event has been held in English for over three years. We