Sign a petition to Reinstate Federal Research Funding for ME/CFS

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#MEAction

Help Find a Cure for Whitney Dafoe and others like him!
Hearing that funding has been reduced to nothing is heartbreaking. Please hear out these words from something who is suffering, and help him:

Categories: Actions, Advocacy, Awareness, Featured petitions, Petitions, Severe ME, United States

Latest News

New Volunteer Leadership Program Led by Experts!

May 10, 2022 No Comments

We are thrilled to announce that Chimére Smith and Terri Wilder will be joining #MEAction as consultants to execute a new volunteer leadership training program funded by the Ford Foundation! We are so thrilled that we will be able to expand our volunteer programs to include robust training and provide fulfilling roles and opportunities for

Research Update: The NIH Intramural ME/CFS Study

May 4, 2022 10 Comments

National Institutes of Health researchers who began what may be the deepest biological investigation ever of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are writing up their findings and plan to circulate a draft among their large team of scientists and physicians for feedback soon. “The study will help patients and should move the field forward in

#MEAction Meets with the Department of Labor

May 4, 2022 No Comments

#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor (DOL) where we presented on community issues affecting people with ME and Long COVID and offered policy recommendations that DOL can take to address them. President Biden’s Memorandum tasks DOL

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