Tell the UK government to speed up use of new treatments and tests

Accelerated Access Review – UK (closes 11th Sept)

This is the UK government review on how to get newly researched treatments and tests to patients more quickly. This might have an impact on getting future M.E. drug treatments implemented and diagnostic tests for M.E. at our GP surgeries, considering the rituximab trial and all the research into potential bio-markers.

More information including and a link to a patient’s champion article to give you some ideas can be found at A Prescription for M.E.

Facebook
Twitter
WhatsApp
Email

1 thought on “Tell the UK government to speed up use of new treatments and tests”

  1. Please help us, people with m.e., and c.f.s or whatever we are calling it at the moment we can get diagnosed and then we are left to rot basically, Ignored, there is no continuity of care for us, the pain gets worse the symptoms get worse and still nothing can be done.
    Somedays it feels like I’m in Gods waiting room for my turn to be taken and i’m not even bed bound, but hauling around a body that does not want to work in order to get things done makes life so much harder, it can be very frightening at times things happen that are never explained just added to the list of symptoms probably from your m.e. by doctors it’s not very reasurring because they dont know for sure if it is or not.
    We need alot of funding to help find out more about this disease and how to manage and control it.

Comments are closed.

Latest News

Graphic of yellow canary over black and white photo of a coal mine. Text reads "Canary Corps"

CANARY CORPS – Alison’s Story

Have you registered yet to join us this Wednesday, December 6th at 4pm ET / 1pm PT for a community presentation introducing the Canary Corps program? Ahead of Wednesday’s event we wanted to share with you Alison’s story. Alison Sbrana will be co-presenting this event, and much of the design of Canary Corps has been

Read More »
A rectangle image with a blueish/purple background. The words, "A Year of Exciting Medical Education Achievements" is in white font on the left hand side with the #MEAction logo underneath. On the righthand side is an image of Jaime Seltzer with a step and repeat and poster at the SDMI conference.

A Year of Exciting Medical Education Achievements

A year ago, we were proud to announce that #MEAction and Mayo Clinic Rochester had won a grant for diagnostic improvement, with Ravindra Ganesh, and Stephanie Grach, and I on the grant as co-investigators. Our project, Improving Diagnostic Accuracy of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Through Implementation of an Enhanced Education Protocol and Care Process Model

Read More »
a light orange rectangle with a burnt orange outline. in the box, there are orange flag garlands hanging in both top corners with orange confetti in the middle and at the top. in the bottom corners fall leaves. in the middle of the box the word, "OUR BOLDEST THANKS" in burnt orange. the #MEAction logo at the bottom.

#MEAction Shares Our Thanks for Your BOLD ACTIONS

During this time of thankfulness and gratitude, #MEAction staff wants to share what BOLD ACTIONS we are thankful our volunteers and community have taken throughout the year. We thought we could reflect together on all that we have accomplished this year and how every single one of us is important in this powerful community. A

Read More »