Accelerated Access Review – UK (closes 11th Sept)
This is the UK government review on how to get newly researched treatments and tests to patients more quickly. This might have an impact on getting future M.E. drug treatments implemented and diagnostic tests for M.E. at our GP surgeries, considering the rituximab trial and all the research into potential bio-markers.
More information including and a link to a patient’s champion article to give you some ideas can be found at A Prescription for M.E.
1 thought on “Tell the UK government to speed up use of new treatments and tests”
Please help us, people with m.e., and c.f.s or whatever we are calling it at the moment we can get diagnosed and then we are left to rot basically, Ignored, there is no continuity of care for us, the pain gets worse the symptoms get worse and still nothing can be done.
Somedays it feels like I’m in Gods waiting room for my turn to be taken and i’m not even bed bound, but hauling around a body that does not want to work in order to get things done makes life so much harder, it can be very frightening at times things happen that are never explained just added to the list of symptoms probably from your m.e. by doctors it’s not very reasurring because they dont know for sure if it is or not.
We need alot of funding to help find out more about this disease and how to manage and control it.