NHS Citizen Gather Tool for Myalgic Encephalomyelitis

Share on facebook
Share on twitter
Share on email

Help the NHS make decisions on ME/CFS through Citizen Gather

NHS Citizen Gather – England (closes 11th Sept)
NHS Citizen is a way for the public to play a more active role in NHS England’s decision making. We can use NHS Citizen Gather discussion forum to talk to others about how the NHS can improve. A Citizens’ Jury will choose five issues to be discussed by NHS England leaders and citizens at the NHS Citizen Assembly in November.
From the NHS news release:

“Everyone who joins in with the NHS Citizen Gather can:
Start discussions on how the NHS can improve by posting ideas, suggestions and evidence
Join discussions and comment on what other people are saying
Contribute evidence and insights to develop the discussion
Vote to support the discussions you think are important”

To find out more about NHS Citizen Gather and how to get involved for ME/CFS, read the blog post at A Prescription for M.E..

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

3 thoughts on “NHS Citizen Gather Tool for Myalgic Encephalomyelitis”

  1. We need the government to invest in and provide treatments for ME and release the information secretly held to the public about ME

  2. There’s now a great wish list over on the blog A Prescription For M.E. linked to above if you’d like to add yours or register on the NHS Gather forum and start discussing things there. Action for M.E. are also going to be creating an easier way for us to formulate submissions to the UK NIHR and NHS Citizen Gather, if people are wondering where to begin.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top