Juliet Chenery-Robson is a freelance photo-journalist and editor in the UK. She had to put aside her career and become a full time caretaker when her daughter developed ME at age 13.
Robson has spent the past 10 years raising awareness for ME. She describes an all too familiar experience with doctors:
[pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]Instead of taking it seriously and demanding more research, they try to airbrush it out of existence with antidepressants and talking therapies in the hope it will disappear like a puff of smoke. For most – those who’ve been ill for years and are not getting better – it won’t.[/pullquote] Out of these harrowing experiences, Chenery-Robson has created this stunning photo series on ME.
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the