Saturday, August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe myalgic encephalomyelitis as well as a day of remembrance.
August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME.
Here are three ways you can observe the day:
1) Join the Twitter storm
2) Remember those who have died
3) Break the Silence
Participate in the #sufferingthesilence campaign. Whether you are a caretaker, a patient, or a friend, you can take a photo of yourself in the pose above and share it on social media (Twitter, Facebook, Instagram, etc.).
Use hashtags #sufferingthesilence #MEAction and #severeme (email us or find us on Twitter or Facebook – we’d love to aggregate the photos!)
4) Share the good news
The Open Medicine Foundation has just received an anonymous $500,000 donation for their research on severely ill patients! Their study – the first of its kind – will include many bedridden subjects.
Which makes for #4.5: donate to the OMF and help them find what the severely ill can teach us about ME.
How will you observe severe ME day?
Photo credit: Elaine Boel