NIH To Shift Funding Priorities: Will ME/CFS Benefit?

In the 1980’s HIV/AIDS was the number one cause of death in young adults in the U.S. Whole countries were being decimated. The NIH promised it would commit ten percent of its entire budget to fight HIV/AIDS. Thirty years later it’s still giving ten percent of its budget to HIV/AIDS.
Times are changing though and HIV/AIDS historic set aside may be coming to an end. That means hundreds of millions of dollars of research funding could be opening up. The question is how much will ME/CFS and/or FM get?
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black rectangle image, the #NotJustFatigue logo is yellow lettering in a black box. On the right hand side the words Community member launching a new website today. website www.notjustfantigue.com at the bottom and the #MEAction logo in the bottom right hand corner.

#NotJustFatigue – Community Member Launching A New Website Today!

#MEAction is excited to announce community member, Elizabeth Ansell, created a new website, #NotJustFatigue, launching today, March 1, 2024! This website was created with the hopes it will help describe ME to those who do not know anything about ME. It is a site for people to share with their family and friends. #MEAction is

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a dark plum square image with a brownish/purple square in the middle. The #MEAction logo is at the top center. the words: black ME voices: q&a with Teona Studemire are in a fancy white font. Black history month is at the bottom of the square surrounded by two black stars.

 Black ME Voices: Q&A with Teona Studemire

With it being Black History Month, it was crucial to me to make sure we spotlighted someone from the ME/CFS and Long COVID community who is Black. Being Black and disabled is an entirely different experience. Not only do we deal with ableism, but we also deal with racism, especially medical racism. According to the

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