NIH To Shift Funding Priorities: Will ME/CFS Benefit?

In the 1980’s HIV/AIDS was the number one cause of death in young adults in the U.S. Whole countries were being decimated. The NIH promised it would commit ten percent of its entire budget to fight HIV/AIDS. Thirty years later it’s still giving ten percent of its budget to HIV/AIDS.
Times are changing though and HIV/AIDS historic set aside may be coming to an end. That means hundreds of millions of dollars of research funding could be opening up. The question is how much will ME/CFS and/or FM get?
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blackish rectangle with the words, MEAction Georgia Volunteer - Maggie Boxey- at TEDxOjia with the meaction logo in the bottom right corner.

#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai

#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience as a person with ME. Maggie was diagnosed a year ago but has been sick since 2020. Before becoming sick Maggie and

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SOS: Save our Science

People disabled by ME and Long Covid across the UK send out an SOS.  It’s time to send out our SOS signal, if we want to have funded research. May 12th, is Myalgic Encephalomyelitis Awareness Day. On this day, the #MillionsMissing of people with myalgic encephalomyelitis (ME) gather to demand an increase in research and

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a blue square image that features waves as the background. The 2025 #MillionsMissing logo at the top. followed by the words, Why We're sending out an SOS. A life preserver is in the bottom right corner and the meaction logo is in the bottom left corner.

Why We’re Sending out an SOS this #MillionsMissing

On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society.  HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to

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