Support #MEAction this Giving Tuesday

Share on facebook
Share on twitter
Share on email

It’s been an amazing year in ME advocacy. In countries all around the world, patients are rising up with a new energy (if that’s the right word!) of creativity and collaboration. There is a growing sense that we are living in a moment that is bigger than any one advocate or organization. That we are at the beginnings of a movement.
#MEAction is all about creating the tools and platform to support, empower and amplify that movement.  We are young and want to grow, but need to grow in a way that is sustainable. We will always be a grassroots organization, powered substantially by the hard work of volunteers, but sustainability means having the resources for healthy staff members. Staff members who can develop and maintain our platform and support and coordinate the work of our co-founders and volunteers. In order to do that, we need your help!
[button_color url=”” content=”Donate now” target=””]  
With the work of Beth, Jen, and a small number of ultra-dedicated volunteers, here is what we have achieved since our launch in May 2015:

  • Through our newsletter and social media channels, we have supported more than 70 actions launched by individual advocates and organizations in multiple countries around the world. We’ve helped fundraise for research, drive audiences to screenings of Forgotten Plague, and started to engage the community in a more democratic form of decision-making.

Direct advocacy

  • 21st Century Cures Action: We hired a congressional consultant in DC who, in conjunction with patients and family members, met with staffers for fifteen Senators on the HELP committee to request that ME/CFS be moved to NINDS and that ME/CFS research be increased so it is commensurate with disease burden.


One Click Politics CDC letter-writing campaign: In collaboration with Solve ME/CFS, 561 letters were written in less than a week to the Congressional staffers about their cuts in the CDC’s ME/CFS research program, resulting in a high level meeting with staffers regarding cuts. This tool is also available for activists in Canada and Australia.
Breaking news stories:

Case studies:

Community organizing:

We plan to do a big push for a healthy operating budget for 2016 after the new year allow us to achieve our dreams of hiring healthy staff, pushing for US Congressional funding, launching multilingual versions of the site, growing MEpedia, launching our fee-free crowdfunding platform, and building a map of ME-friendly healthcare providers around the world.
But in the meantime, we appreciate your support and recognition of the strong start we have made in the six months since launch. This is only the beginning!
[button_color url=”” content=”Donate now” target=””]  

Share on facebook
Share on twitter
Share on whatsapp
Share on google
Share on email

1 thought on “Support #MEAction this Giving Tuesday”

  1. I continue to be completely BLOWN AWAY by all that you have been able to achieve. You give me hope every day that we can bring about change. Full of gratitude for the precious souls who lead us all on this exciting ride.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

#MEAction activists outside Scottish Parliament

Scottish Election! Ask your MSPs to support people with ME

If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more

Read More »
Terri Wilder - #MEAction Activist Camp

#MEAction’s ACTIVIST CAMP! – the Highlights!

It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads!  #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.


Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Scroll to Top