In-Depth article on ME/CFS Research Plans

Share on facebook
Share on twitter
Share on email

MedPage Today’s Update on ME/CFS Research Plans

MedPage Today reposted Shannon Firth’s earlier article on ME/CFS in their 2015 recap and also published an in-depth update by the author. The new article goes in-depth on Ron Davis’ plans for the Big Data study and also includes an interview with Jen Brea and information from the NIH about their planned study of sudden-onset patients at the NIH Clinical Center.
Shannon Firth writes about Ron Davis’ rejections by NIH, OMF’s 2015 donations, and plans for the Big Data study:

Davis, who is also a professor of biochemistry and genetics at Stanford University School of Medicine, saw two grant proposals rejected by the agency and then chose a different tack: private funding. OMF has collected $1.9 million in private donations this year. Davis said that technology companies in Silicon Valley have also volunteered to help in the analysis phase of his project, known as the Severely Ill Big Data study, for free or at a low cost.

The article ends with Jen Brea’s thoughts on potential progress in understanding the disease:

Brea’s hopeful that with adequate public investment, scientists will see major progress in the next 5 to 10 years. She believes finding the reason for her condition might be relatively straight-forward.
But, she added, “[i]t’s really hard to find an answer for something, when you’re not looking.”

Read the entire article on MedPage Today.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top