In the British media, ME activists who have opposed cognitive behavioral therapy (CBT) and graded exercise therapy (GET) are often been portrayed as an unreasonable, militant “minority.”
Members of the #MEAction Science and Treatment Policy and Media Working Groups have drafted this fact sheet to explain the real reasons why ME patients are opposed to CBT and GET. It’s not that we fear the stigma of mental illness. It’s that these treatments are ineffective and may actually make us worse. That view is held by more than 10,000 people around the world.
Whenever you see a journalist or someone on social media repeating these myths, you can share with them this sheet: “Why ME patients are critical of the PACE trial.”
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You can also see more reports and fact sheets or help us draft new ones by joining the Media Working Group or the Public Awareness group.
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the