In the British media, ME activists who have opposed cognitive behavioral therapy (CBT) and graded exercise therapy (GET) are often been portrayed as an unreasonable, militant “minority.”
Members of the #MEAction Science and Treatment Policy and Media Working Groups have drafted this fact sheet to explain the real reasons why ME patients are opposed to CBT and GET. It’s not that we fear the stigma of mental illness. It’s that these treatments are ineffective and may actually make us worse. That view is held by more than 10,000 people around the world.
Whenever you see a journalist or someone on social media repeating these myths, you can share with them this sheet: “Why ME patients are critical of the PACE trial.”
[button_color url=”http://stgmeaction.wpengine.com/wp-content/uploads/2015/05/MEAction–patient-view-of-the-PACE-Trial-Controversy.pdf” content=”Open PDF” target=””]
You can also see more reports and fact sheets or help us draft new ones by joining the Media Working Group or the Public Awareness group.
Scottish Election! Ask your MSPs to support people with ME
February 25, 2021
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If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more
1 thought on “Debunking the myth of the militant minority”
Thank you! This fact sheet couldn’t be more timely for me – I’ve just had a provider state that “Mayo Clinic treats CFS” and all I find on the Mayo Clinic site is CBT and GET. SO damaging!!!