Open Letter Demands Removal of Netflix's "Afflicted" – Sign the Petition

Share on facebook
Share on twitter
Share on email

On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service.
“We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions,” states the letter. “Its inclusion on your platform — which reaches three hundred million viewers worldwide — will reinforce barriers to appropriate medical care or disability benefits, dampen the support of vital research, and add to the stigma and social isolation of an already profoundly marginalized group of people.
Signers include: #MEAction and Unrest director, Jen Brea; Nobel Laureate, Mario Capecchi; Actress, Lena Dunham; Anti-bullying Advocate, Monica Lewinksy; Researcher, Ron Davis; Designer, Ally Hillfiger; Disability rights advocates, Laurence Carter- Long and Judy Heumann; and many more.
Newspapers around the world have already begun reporting on the open letter demand to remove Afflicted from Netflix. Read the Los Angeles Time’s article. Read The Guardian article. Read the Huffington Post article. Read the Pop Culture article. Read the Daily Mail article.
#MEAction shares the deep concern about the unethical treatment of the Afflicted subjects, and the docuseries’ many factual errors and omissions.  
We are alarmed that the producers violated the trust of the subjects and misrepresented their diseases for the entertainment value of presenting the subjects as “curiosities” to its audience.
We are deeply disappointed that the producers did not take the opportunity to delve into the truth of these diseases, as documented by the medical literature and patient experience, and, instead, chose to contribute to the stigmatization and shaming of people with ME, Lyme disease and mold and chemical sensitivities.
Read the full letter here:
[maxbutton id=”18″ url=”https://t.co/4f0s9zhPcj?amp=1″ text=”READ THE LETTER” ]  
Sign #MEAction’s petition to endorse the letter yourself:
[maxbutton id=”19″ url=”https://my.meaction.net/petitions/remove-afflicted-docuseries-from-netflix-now” text=”SIGN THE PETITION” ] *  Featured photo shows individuals whose stories were misrepresented in Netflix’s Afflicted docuseries (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine.
NOTE: The open letter with original signatures is seven pages. The petition text is an excerpt of the open letter. The letter’s concluding paragraph, which demands the removal of Afflicted, has been moved to the top of the petition for clarity. You are encouraged to read the full text of the letter.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

2 thoughts on “Open Letter Demands Removal of Netflix's "Afflicted" – Sign the Petition”

  1. Oxford English definition of a documentary: ” Using pictures or interviews with people involved in a real event to provide a factual report on a particular subject.”
    https://en.oxforddictionaries.com/definition/documentary
    From reports, “Afflicted” doesn’t sound like a documentary. The common understanding of a documentary is one that observes, and reports facts, well rounded facts, not intervenes in people’s lives and mis-portrays the real evidence or story.
    It seems “Afflicted” has been portrayed as a documentary when it is no such thing.

  2. Oxford English definition of a documentary: ” Using pictures or interviews with people involved in a real event to provide a factual report on a particular subject.”
    https://en.oxforddictionaries.com/definition/documentary
    From reports, “Afflicted” doesn’t sound like a documentary. The common understanding of a documentary is one that observes, and reports facts, well rounded facts, not intervenes in people’s lives and mis-portrays the real evidence or story.
    It seems “Afflicted” has been portrayed as a documentary when it is no such thing.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top