* Nina E. Steinkopf is a ME patient activist and author of the blog www.melivet.com.
The petition is addressed to the Norwegian Ministry of Health and Care Services and below is an English translation – for our international supporters. Everyone is encouraged to sign the petition.
The management for the National Advisory Unit on CFS/ME must resign.
Even though the cause of myalgic encephalomyelitis (ME) isn’t yet discovered, the biomedical research clearly shows that ME is a physical disease. However, the management for the National Advisory Unit on chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME) still upholds the biopsychosocial model and mixes ME with other conditions. This leads to wrong treatments and inadequate help for ME patients.
The National Advisory Unit’s views are based on research where the patient selection is a mix of different conditions such as burnout, depression or overtraining in athletes. The results of these studies can’t be transferred directly to ME patients. ME patients deteriorate and suffer from the treatments the advisory unit recommends, and their approach is harming the patients.
ME patients are entitled to evidence-based treatments and we demand that the management for the National Advisory Unit on CFS/ME is replaced with a new one that:
– Keeps up-to-date on biomedical research,
– Uses strict diagnostic criteria for ME and distinguishes ME from other conditions,
– Provides correct and up-to-date information to the healthcare system,
– Takes ME patients seriously, and
– Acknowledges that ME is a physical disease
ME patients and their families lack faith in the management for the National Advisory Unit on CFS/ME.
We demand that the management for the National Advisory Unit on CFS/ME resigns.
[maxbutton id=”21″ url=” text=”Sign the Petition” ]
Why We Keep Telling the Story of ME to the Press
June 6, 2023
No Comments
Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the
4 thoughts on “Sign Norway's Petition: Demand Resignation of Advisory Board Promoting Biopsychosocial Model”
Here is the link to the petition:
https://www.underskrift.no/vis/7358
Thank you for your support!
Just signed!
Thank you!
I do not understand how you can work against research that includes all kind of possible ways to heal from ME. We have a very strong psyche and it can be used to help our body to heal. Research examining the effects of meditation shows for example that it can change the energy metabolism in the body. Mind and body always interact. Meditation and other mental training methods can be very challenging and demand skillful help but people need to be informed that there are ways to help the body turn the energy spiral up again. Why take away hope from people getting ill when there are lots of examples of people healing from ME?
Comments are closed.