Sign Norway's Petition: Demand Resignation of Advisory Board Promoting Biopsychosocial Model

Share on facebook
Share on twitter
Share on email

* Nina E. Steinkopf is a ME patient activist and author of the blog www.melivet.com.
The petition is addressed to the Norwegian Ministry of Health and Care Services and below is an English translation – for our international supporters. Everyone is encouraged to sign the petition.
The management for the National Advisory Unit on CFS/ME must resign.
Even though the cause of myalgic encephalomyelitis (ME) isn’t yet discovered, the biomedical research clearly shows that ME is a physical disease. However, the management for the National Advisory Unit on chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME) still upholds the biopsychosocial model and mixes ME with other conditions. This leads to wrong treatments and inadequate help for ME patients.
The National Advisory Unit’s views are based on research where the patient selection is a mix of different conditions such as burnout, depression or overtraining in athletes. The results of these studies can’t be transferred directly to ME patients. ME patients deteriorate and suffer from the treatments the advisory unit recommends, and their approach is harming the patients.
ME patients are entitled to evidence-based treatments and we demand that the management for the National Advisory Unit on CFS/ME is replaced with a new one that:
– Keeps up-to-date on biomedical research,
– Uses strict diagnostic criteria for ME and distinguishes ME from other conditions,
– Provides correct and up-to-date information to the healthcare system,
– Takes ME patients seriously, and
– Acknowledges that ME is a physical disease
ME patients and their families lack faith in the management for the National Advisory Unit on CFS/ME.
We demand that the management for the National Advisory Unit on CFS/ME resigns.
[maxbutton id=”21″ url=” text=”Sign the Petition” ]

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

4 thoughts on “Sign Norway's Petition: Demand Resignation of Advisory Board Promoting Biopsychosocial Model”

  1. Malin Wästlund

    I do not understand how you can work against research that includes all kind of possible ways to heal from ME. We have a very strong psyche and it can be used to help our body to heal. Research examining the effects of meditation shows for example that it can change the energy metabolism in the body. Mind and body always interact. Meditation and other mental training methods can be very challenging and demand skillful help but people need to be informed that there are ways to help the body turn the energy spiral up again. Why take away hope from people getting ill when there are lots of examples of people healing from ME?

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Waiting for Superman Book on table

Waiting for Superman – UK Book Giveaway and Review

Do you want to win a free copy of Waiting for Superman? We have three copies to give away to people in the UK!  To enter, all you have to do is follow #MEAction UK on Instagram, like and comment on this post. The deadline is 9am (GMT) Monday 8th March! Win a copy! Thank

Read More »
#MEAction activists outside Scottish Parliament

Scottish Election! Ask your MSPs to support people with ME

If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more

Read More »
Terri Wilder - #MEAction Activist Camp

#MEAction’s ACTIVIST CAMP! – the Highlights!

It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads!  #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top