The Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) Advisory Committee, set up by the National Health and Medical Research Council to advise the government on research and clinical guidelines, has one more meeting before releasing their report for public consultation.
The ME and CFS Advisory Committee will be finalising the report at the next meeting. The same group of people are advising the government on who should be consulted. People with ME in Australia have pushed for a more transparent process and consultation with experts.
If you would like to be notified when their report is available to the public and open for feedback, email the NHMRC at [email protected]
The minutes from August and September meetings have not been published yet. Previous meetings’ minutes are on the NHMRC website.
The NHMRC have added a section ‘Information for Clinicians‘ which does not include the International Consensus Primer on Myalgic Encephalomyelitis for Medical Practitioners, the booklet endorsed and provided by Australian patient organisations to their members and to GPs. The ICC authors are the world’s leading experts, including Australia’s Prof Marshall-Gradisnik, Prof Staines and Dr Don Lewis.
The NHRMC links to a number of resources for clinicians which recommend exercise, cognitive behavioural therapy and antidepressants.
The ME community has had a lot of questions about whether it is safe to get the COVID-19 vaccine. ME/CFS experts from the Center for Complex Diseases, the Institute for Neuro-immune Medicine and the Bateman Horne Center have weighed in with their recommendations on this matter. Overall, clinicians are recommending that people with ME get