It has been an Intense Week!

Author:

Share on facebook
Share on twitter
Share on email

It Has Been A HUGE Week in the U.S.!

This last week has been a bit of a whirlwind – we’ve never been busier! It’s been a week of advancing the cause of health equality for people with myalgic encephalomyelitis through the launch of the Unrest continuing medical education program and the expansion of our US advocacy team. It’s also been one of defending our rights, from the sudden shutting down of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) to Danish psychiatrist Per Fink’s invitation to speak at a conference at Columbia University.

We’re advancing medical education: We teamed up with the Time for Unrest campaign to make using Unrest as a tool for medical education easier than ever. Medical providers can now watch Unrest plus a training video on the diagnosis and management of ME and receive continuing education credit. Over the next twelve months, we’re going to be working to bring Unrest CE to thousands of providers across the United States.

 

We’re fighting for a better CDC website: We sent our recommended changes to the CDC’s ME/CFS website, incorporating your feedback in our recommendations. We urged the CDC to make clear the harms of graded exercise; place greater emphasis on the importance of pacing; and more accurately represent severe ME.

 
 

We’re demanding the HHS secretary reinstate CFSAC: We collated your incredible photos and messages from last month’s virtual protest and sent a letter to Secretary Azar demanding the Chronic Fatigue Syndrome Advisory Committee (CFSAC) be reinstated.

 
 

We’re supporting local activism: We supported the incredible efforts of #MEAction New York to speak out against Danish psychiatrist Per Fink and stop him from spreading harmful misinformation about ME at a psychosomatic conference at Columbia University. Activists organized a protest and a petition that garnered over 10,000 signatures!

 
 

We’re growing our capacity for national and local advocacy: We are so thrilled to announce the newest member of our team, Erin Roediger, our first-ever U.S. Advocacy Manager. With her support, we’ll be expanding our congressional outreach to build support on the Hill for greater research funding and equal access to medical care, and growing our network of state and local #MEAction groups for support, awareness, medical education, and advocacy.

 

Everything we do at #MEAction is made possible through your love, support, volunteer hours, and donations. As our team expands and our capacity to have even greater impact grows, it’s more important than ever that we sustain this work. 

We know how much this disease steals from us financially. If you cannot give today, we continue to appreciate all the ways you support the movement: every petition you sign, every hour you volunteer, every article you share with friends and loved ones, all brings us one step closer to achieving health equality. If you are in a position to donate, we are so grateful for your support on behalf of those who cannot. Remember that every dollar counts. We’re a big community, and even $5, $10, or $25 donations can add up to make a big impact.

With gratitude,
Jennifer Brea
Volunteer Executive Director
#MEAction

[maxbutton id=”21″ url=”www.meaction.net/donate” text=”Donate Today” ]

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

NHS England omits advice to apply clinical judgement re vaccine

It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and GPs in the UK has omitted advice that health professionals can and should apply their clinical judgement when placing people in group 6. Vaccination of people with underlying health conditions that put them at risk of

Read More »
Waiting for Superman Book on table

Waiting for Superman – UK Book Giveaway and Review

Do you want to win a free copy of Waiting for Superman? We have three copies to give away to people in the UK!  To enter, all you have to do is follow #MEAction UK on Instagram, like and comment on this post. The deadline is 9am (GMT) Monday 8th March! Win a copy! Thank

Read More »
#MEAction activists outside Scottish Parliament

Scottish Election! Ask your MSPs to support people with ME

If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top