This is the fifth of our new series of periodic calls for #MEAction co-founders Jen Brea and Beth Mazur to meet other activists “face to face.” It’s an opportunity to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions.
We’d love this call to especially focus on connecting with activists in Australia.
Sign petition To Fix ME/CFS tracking In US!
September 13, 2021
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In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the
1 thought on “#MEAction Google Hangout: Australia”
I have only started ME/CFS advocacy work this year, mainly through the ME/CFS Australia Facebook website and have just become a Committee member of the ME/CFS South Australian Society. Canary in a Coal Mine was a catalyst for me becoming more involved.
Adelaide, South Australia is hoping to set up a world first clinic with research attached. I have been under the doctor whose protocol is being used and refined, so I have first hand experience with the treatment process which is ‘precision’ medicine: A step by step approach that is tailored to each individual’s biochemical profile.