November 20th Update: Thanks to all of our members who voted in this poll. A significant minority of our members voted against #MEAction signing the letter, so we have decided to not formally sign the letter. We are still working out what policies make sense and really appreciate all of our members’ flexibility and openness as we work out the processes that can best represent our members.
Dear #MEAction users,
Please find below a letter to NIH which thanks Dr Collins and Dr Koroshetz for their October 29th announcement while also making clear that we need increased funding and follow-through to ensure parity with other serious diseases.
We are taking a vote of all registered users as to whether #MEAction should join the other organizations and formally sign this letter. Please respond by Wednesday, November 18 at 11:59pm US EST.
#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are a few responses: Kristina Osobka-Stier