I’ve raised $6500 in 24 hours — imagine what we could raise if you all joined in?
This is my Crowdrise fundraiser for the Solve ME/CFS Initiative. You can join my team by hitting the “fundraise for this campaign” button. That’s it. You don’t have to create any content, or write anything. Just join the team, and share with the link with your network.
I created a short video that I hope will help patients explain our complex disease in a simple way to friends and family, and get them on board.
SMCI has done great work supporting patients for 27 years. Recently, Carole Head has spearheaded conversations in Washington DC. So they are helping not only with research but also with lobbying at the highest levels. We just made a step with the NIH but must keep pushing — supporting SMCI right now is an important part of that.
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The NIH ME/CFS Research Roadmap public comment period is open now with a deadline of March 8th. #MEAction is a member of the ME/CFS Research Roadmap Working Group and for the past several months we have been advocating on behalf of this community within this group. Our Executive Director, Laurie Jones, served on the nervous