I’ve raised $6500 in 24 hours — imagine what we could raise if you all joined in?
This is my Crowdrise fundraiser for the Solve ME/CFS Initiative. You can join my team by hitting the “fundraise for this campaign” button. That’s it. You don’t have to create any content, or write anything. Just join the team, and share with the link with your network.
I created a short video that I hope will help patients explain our complex disease in a simple way to friends and family, and get them on board.
SMCI has done great work supporting patients for 27 years. Recently, Carole Head has spearheaded conversations in Washington DC. So they are helping not only with research but also with lobbying at the highest levels. We just made a step with the NIH but must keep pushing — supporting SMCI right now is an important part of that.
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In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the