Letter: Ask HHS to Investigate PACE

November 6, 2015

Author:

#MEAction

Dear #MEAction users,
Please find below a letter to HHS (CDC and AHRQ) calling on them to investigate the PACE trial and take whatever steps are needed to protect patients. This includes revising the AHRQ Evidence Review and CDC clinical guidelines to remove recommendations such as cognitive behavior therapy (CBT) and graded exercise (GET) that are based on PACE and other Oxford studies.
We are taking a vote of all registered users as to whether #MEAction should join the other organizations and formally sign this letter. Please respond by Sunday, November 8th at 12pm US EST.

1) Read the letter

2) Vote

[yop_poll id=”2″]

Categories: Polls, United States

Latest News

Text “Exercise can worsen Long Covid.” A person is falling through the air; their face is blurred and legs and arms are reaching upward. The background is a cracked glass screen.

MEAction questions Long COVID exercise study’s safety, efficacy

March 6, 2023 1 Comment

Calls for immediate public release of RECOVER’s clinical trial design

#MEAction Colorado Works With Governor’s Office to Create A New Senior Policy Advisor Role on Long COVID and Post Viral Infection Planning–Leading to Statewide Report on Long COVID

February 24, 2023 No Comments

#MEAction Colorado’s first legislative effort in Colorado began with an ME/CFS day declaration in the Colorado Legislature on February 25, 2020. Representative Alex Valdez read into the legislative record a proclamation about the presence of and deleterious effects of ME in Colorado. This effort was relatively easy to accomplish and consisted of finding a representative

Left: Woman healthy and happy standing beside her husband. Right: Sick woman in hospital bed.

Woman with Severe ME and EDS starving to death in NHS hospital

February 22, 2023 11 Comments

UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now. The situation in hospital reached the point that Sami decided she had to self-discharge to try and stay alive. She is at home with a Percutaneous Endoscopic Jejunostomy (PEJ ) tube but she needs treatment with

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.