I have been looking at this tantalizing survey by the Autism Research Institute for a few years now. It aggregates 27,000 parents’ reports on the effects of pharmaceutical and alternative interventions on autistic children. It’s not a clinical trial or a substitute for doctors’ advice. It uses subjective, self-reported measures (which we all know are problematic). It’s also a static snapshot. But for a long time I’ve been experimenting with treatments with much the same philosophy: which treatments are likely to be most effective with the lowest risk of harm?
I would love to try to assemble a similar report for the ME and CFS community. In order to create a survey that represents the most common treatments we have all tried, the first step is to gather a list of as many treatments as possible.
Click below to enter a list of the treatments you have tried. Thank you so much for your participation!
#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of