I have been looking at this tantalizing survey by the Autism Research Institute for a few years now. It aggregates 27,000 parents’ reports on the effects of pharmaceutical and alternative interventions on autistic children. It’s not a clinical trial or a substitute for doctors’ advice. It uses subjective, self-reported measures (which we all know are problematic). It’s also a static snapshot. But for a long time I’ve been experimenting with treatments with much the same philosophy: which treatments are likely to be most effective with the lowest risk of harm?
I would love to try to assemble a similar report for the ME and CFS community. In order to create a survey that represents the most common treatments we have all tried, the first step is to gather a list of as many treatments as possible.
Click below to enter a list of the treatments you have tried. Thank you so much for your participation!
It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and GPs in the UK has omitted advice that health professionals can and should apply their clinical judgement when placing people in group 6. Vaccination of people with underlying health conditions that put them at risk of