Close to collapse: new report highlights shocking lack of social care for people with M.E.

[pullquote align=”full” cite=”” link=”” color=”” class=”” size=””]”I haven’t got the energy to spare to jump through hoops to get the help from social services that I am entitled to.”[/pullquote] This is the experience of just one of the 850 people with M.E.in the UK surveyed for Action for M.E.’s Close to collapse report, detailing the shocking gap between social care needs and service provision for people with M.E.
The report will be launched by lead author and Action for M.E. Volunteer Research Officer, Catherine Hale, and our Chief Executive Sonya Chowdhury, at our conference and AGM in London on Thursday 12 November at 10.35am.
You can watch this event live from home via Ustream (simply click to watch and/or register to contribute to the live chat).
Other presentations include:

  • integrating health and social care: making it work in Greater Manchester, by Julie Rigby, NHS England (11.05am)
  • integrated health and employment support for people with M.E., by Dr Hazel O’Dowd, Clinical Lead, Bristol NHS M.E. Service (11.35am).

There will be a Q&A with all the presenters at 12.05pm, then a break for lunch and workshops before livestreaming resumes for our AGM at 3.30pm.

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4 thoughts on “Close to collapse: new report highlights shocking lack of social care for people with M.E.”

  1. Thank you for highlighting this report and YES we know only too well the lack of social care or even much care at all for ME patients.
    Shocking disgrace in this day and age and in a supposedly wealthy country!!
    Thank you for highlighting the FINE Trial. I think we would all like to forget that!!

  2. If you are unable to work it makes sense you are unable to attend interviews about health! There should be a more intelligent way of doing things. It is embarrassing that MPs get all sorts of hand out; meals in parliament help in offices and paid holiday! Yet someone fighting ill health and detrimental treatment gets statistical nonsense thrown at them! Shame when big business don’t pay taxes?

  3. My daughter has had no help from her doctors or anyone. Cannot find a Dr that believes or understands M/E.
    She is battling everyday just to keep going. It’s disgusting that the medical professionals are not really interested in M/E and its effects. I always thought drs especially, would have enquiring minds It is not the case.

  4. In the US Medicare and other private policies don’t provide beyond what is termed ADL, activities of daily living. So, if you can get food to your mouth and feed yourself, get to a toilet, and bathe yourself, you are SOL because that is all that they cover anyway. No cooking or cleaning or running of errands such as to the grocery store or pharmacy. Our social system then goes down several notches to…. nothing. Oh, maybe if Meals on Wheels hasn’t run out of money in your community you can have a meal brought to your house but you have to make it to the door. I’m curious as to what the UK would be able to offer beyond what I’ve mentioned. I’d say we have a shocking lack of care in the US for people with ME/CFS. Total as a matter of fact. Ain’t it a shame? Marcie Myers

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