We are actively promoting our satellite demonstration at the San Francisco regional office of Health and Human Services on May 25, 2016. The SF regional HHS office represents people living in California, Arizona, Nevada and Hawaii.
If there is any way you can, please come! If you have never been to a demonstration before, now is the time. Don’t be intimidated – it is likely to be a very low-key event, but the more people, the more the impact. We will have a banner and signs, so you can just show up and hang out with us. You are also welcome to bring any of your own if you wish.
Ask your friends, people in your church or community groups, family members, coworkers (or former coworkers, for the many of us who can no longer work!) to attend.
If you live in one of those states and want to be represented but you are unable to attend, please email a photo, your full name, city, state and length of illness to [email protected]. If you like, tell us briefly how ME/CFS has impacted your life. We will display these photos at the demonstration, and will be your voice!
If you want more information, or can help in any way, please contact Jane at [email protected] or Cheryl at [email protected].
We are currently seeking ‘low-spoon’ task ideas to help ensure that anyone can be actively engaged in the #MillionsMissing campaign, and suggestions for ways to involve friends and family members.
We need to take advantage of the momentum we currently have going! Please help us to be seen and heard!
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the