Put us on the map!

Share on facebook
Share on twitter
Share on email

How many of us are out there with ME/CFS? Put yourself on the map so that we can show the world how many of us exist!
Put yourself on the map using this website: diseasemaps.org.
Simply search for Chronic Fatigue Syndrome/M.E., and then add your information. (Include name or not.) We can prove to our health agencies that we do exist! Also, you can see who is suffering with ME/CFS around you.
 

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

6 thoughts on “Put us on the map!”

  1. Mark Camenzind

    We want to go from 1000 ME on map two weeks ago to 1500 today to 5000 by May 1, 10,000 by end of May.
    Be sure to go to diseasemaps.org, make login, save PW since you can change later, and recommend not doing your full real name unless you are comfortable with the world knowing this forever, but perhaps like MarkC or JSmith etc so people might have better chance of knowing who is where so you can advocate locally, with a congressional rep for example.
    Recommend you put your male or female symbol not at your exact address, but as nearby school or park, library etc that is public, but not a home, unless you want people to know exactly where you live (not recommended).
    Recommend enabling contact via e-mail, which is hidden, so people nearby can contact you if meeting with rep or other actions, Forgotten Plague showing etc.
    Asked every ME patient you know anywhere to add to this map, and add good MDs, advisors, Clinics and R&D centers, then the missing millions of people will appear, missing millions in funding will appear.
    Please ask also GOOD international ME groups to join, since large portion of R&D happens overseas incl Australia, Norway Sweden, Belgium, UK, Canada, and we can use all the help we can get.
    If we all row together, we can finally Solve CFS and Cure M.E.

  2. PLEASE NOTE: ‘Chronic Fatigue Syndrome/M.E.’ …..is what comes up in the search box. Simply typing ‘CFS’ or ‘ME’ will NOT navigate you to the correct illness.

  3. Mark Camenzind

    OpenMedicineFoundation, Solve CFS, a group in BC canada are now also listed. Suggest local organizations may also want to get listed for people to be able to join, meet, share ideas, do fundraisers and advocacy. Disease maps is very useful geographic, organizational lobby tool. Let let the missing been seen. Ask everyone affected to list and we will be much stronger and able to get our demands met.
    On a local scale, just like pink ribbons are associated with breast cancer awareness, hope we can make blue ribbons representative of M.E. I have placed Blue ribbons on front porch, tree, mailbox and may “Stay Blue until they Cure M.E.”

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

#MEAction activists outside Scottish Parliament

Scottish Election! Ask your MSPs to support people with ME

If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more

Read More »
Terri Wilder - #MEAction Activist Camp

#MEAction’s ACTIVIST CAMP! – the Highlights!

It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads!  #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top