Fundraiser: #MillionsMissing needs your help!

Share on facebook
Share on twitter
Share on email

On May 25, 2016, #MEAction is sponsoring a community-organized protest at Departments of Health and Human Services (HHS) across the country, and in cities all over the world.

As a community, we are bowled over by the response.  The protest started as a single effort in Washington, D.C., but as of today there will be organized protests in:

We are still looking for people to organize in New York, Philadelphia, Chicago, Kansas City, and Denver — imagine the power in saying that every regional HHS office in the United States was included in the protest!
We released the #MillionsMissing Protest Demands, with four main goals for the future of ME/CFS in the U.S.:

  1. Increase research funding and program investments for ME/CFS commensurate with the severity of the disease: $250 million per year.
  2. Accelerate clinical trials for ME/CFS (there are no current FDA-approved medications for the disease).
  3. Disseminate accurate medical education and clinical guidelines to end the spread of harmful, erroneous information about ME/CFS.
  4. Provide HHS leadership, oversight and a serious commitment to urgently address ME/CFS.

We have finished our press release to help educate the press about ME/CFS and the issues we face as a community.

This is our fight for change.  Can you help?

If the goals of the #MillionsMissing protest are important to you, we hope you will be able to donate to the cause.  Every little bit helps!
You can donate by clicking on the link below:




 
Despite our physical debility, we are a vibrant, strong community with a lot of fight in us!  Thank you for sharing your passion and commitment to ME/CFS.
______________________________________
Note: to donate to the protest, use the button above.  To donate to #MEAction as a whole, use the button below the article.
Thank you so much!
______________________________________
Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top