Fundraiser: #MillionsMissing needs your help!

On May 25, 2016, #MEAction is sponsoring a community-organized protest at Departments of Health and Human Services (HHS) across the country, and in cities all over the world.

As a community, we are bowled over by the response.  The protest started as a single effort in Washington, D.C., but as of today there will be organized protests in:

We are still looking for people to organize in New York, Philadelphia, Chicago, Kansas City, and Denver — imagine the power in saying that every regional HHS office in the United States was included in the protest!
We released the #MillionsMissing Protest Demands, with four main goals for the future of ME/CFS in the U.S.:

  1. Increase research funding and program investments for ME/CFS commensurate with the severity of the disease: $250 million per year.
  2. Accelerate clinical trials for ME/CFS (there are no current FDA-approved medications for the disease).
  3. Disseminate accurate medical education and clinical guidelines to end the spread of harmful, erroneous information about ME/CFS.
  4. Provide HHS leadership, oversight and a serious commitment to urgently address ME/CFS.

We have finished our press release to help educate the press about ME/CFS and the issues we face as a community.

This is our fight for change.  Can you help?

If the goals of the #MillionsMissing protest are important to you, we hope you will be able to donate to the cause.  Every little bit helps!
You can donate by clicking on the link below:




 
Despite our physical debility, we are a vibrant, strong community with a lot of fight in us!  Thank you for sharing your passion and commitment to ME/CFS.
______________________________________
Note: to donate to the protest, use the button above.  To donate to #MEAction as a whole, use the button below the article.
Thank you so much!
______________________________________
Facebook
Twitter
WhatsApp
Email

Latest News

a multi-water colored image with the words, Severe ME Artists Project 2024 in white font outlined in black. the meaction action logo in the bottom right hand corner.

Severe ME Artists Project 2024

Quick Overview: Submit one piece of artwork – image, writing, or video Label your artwork with your name as you want it to appear, an underscore, and the number of years with severe ME Example: Lastname_FirstName_14 FirstNameOnly_ No copyrighted material If you are submitting a video, it must be under two minutes. Submission due by

Read More »
Light blue square with rainbows in the top left and bottom right corner. In the middle are the words, -Pride is Valid- No Matter How One Celebrates or Experiences It. #MEAction Board Member, Jennifer England, shares her views on Pride. The #MEAction logo in the top right corner.

Pride Is Valid No Matter How One Celebrates or Experiences It

In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England, about what Pride means to her and her wife who lives with severe ME. My wife and I have both been queer our whole lives, but in the 70s that was the quiet part you didn’t say out

Read More »

Questions to Ask Prospective MPs About ME/CFS

In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people with ME and Long Covid. It can be a little daunting to be unprepared so here are some questions you might want

Read More »
Scroll to Top