Send your ME/CFS story on a 240-km journey

Author:

Jaime S

On Saturday, 7 May 2016, Mike Sutton will begin a 240-km (150-mi) journey along the Camino del Norte to raise awareness and generate more funding for ME/CFS.
Mike is dedicating each day of the ten-day walk to an ME/CFS sufferer, using the hike as a platform to tell their story, share a picture of them during the walk that day, and help show the world that just because governments aren’t taking this illness seriously doesn’t mean it isn’t serious. Sutton hopes that the hike will raise awareness and generate funding for ME/CFS.
If you are interested in making your story part of Mike’s journey:

Contact Mike and answer a few questions about your ME/CFS experience
On the day dedicated to you, he will share a picture of you ‘with’ him on the walk; you’ll need to download a special app for this on an Android phone
He will put up a page with the image and a description of your ME/CFS experience; you are invited to make any changes you want

Mike hopes through his efforts, he can ensure that this very human illness has a human face.
Contact Mike by visiting his blog entry I’m Going for a Walk and leaving him a comment to let him know you are interested. Act fast to ensure your story is heard; Sutton starts his walk in just one week!

Categories: Actions, Awareness, Featured events, Fundraisers
Tags: activism, advocacy, awareness, fundraiser, MECFS

Latest News

Sign petition To Fix ME/CFS tracking In US!

September 13, 2021 No Comments

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

NICE announces roundtable event to ensure implementation of ME/CFS guideline

August 27, 2021 No Comments

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

August 23, 2021 1 Comment

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM). Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign the code for chronic fatigue

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.