Two years ago I co-produced and performed in a theatrical multi-media production about ME/CFS. It’s called Gemma Climbs Her Mountain and uses both my story and the testimony of over 200 patients to convey the awful reality of living with this disease. Interspersed with new film footage of interviews with leading spokespeople such as Dr Nigel Speight, Professor Simon Carding, Countess of Mar and Dr Charles Shepherd, it is a powerful show that is both educational and profoundly moving. We now need support to take the play on tour and so that we can show it to organisations who have expressed an interest in supporting us further such as the British Council.
Please consider visiting our Go Fund Me campaign here. I believe that the arts have a potential to reach people that facts alone cannot achieve. Thank you so much for your support!
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the