UK: Ask your MP to support release of PACE

If you’d like to get involved in International M.E. Awareness Month but don’t know where to start, or are simply too unwell to get stuck in, then this may be the perfect place to start.
I am very pleased to share with you a template letter which you can print and post to your MP. The letter details the true nature of the condition, the current medical and social climate for sufferers, and concludes with an invitation to attend the APPG meeting on M.E. this Wednesday, 11th May and support the removal of psychiatry from M.E.
Printing and sending the memo will not only give you the opportunity to open a pathway of awareness within your community, but will lock you arm in arm with M.E. sufferers across the country. Unifying British M.E. patients through communication speaks volumes, and shows a powerful front ahead of events this International M.E. Awareness Month.

If you want to connect on a personal level with your MP, consider adding a note about your M.E. story. You could even add a photo of your shoes proudly on display outside your front door or driveway. In fact, a specialised version of this letter was signed by myself and sent to David Cameron PM just a few short days ago.
Print your copy of the letter now and get involved this International M.E. Awareness Month.
Facebook
Twitter
WhatsApp
Email

Latest News

black rectangle image, the #NotJustFatigue logo is yellow lettering in a black box. On the right hand side the words Community member launching a new website today. website www.notjustfantigue.com at the bottom and the #MEAction logo in the bottom right hand corner.

#NotJustFatigue – Community Member Launching A New Website Today!

#MEAction is excited to announce community member, Elizabeth Ansell, created a new website, #NotJustFatigue, launching today, March 1, 2024! This website was created with the hopes it will help describe ME to those who do not know anything about ME. It is a site for people to share with their family and friends. #MEAction is

Read More »
a dark plum square image with a brownish/purple square in the middle. The #MEAction logo is at the top center. the words: black ME voices: q&a with Teona Studemire are in a fancy white font. Black history month is at the bottom of the square surrounded by two black stars.

 Black ME Voices: Q&A with Teona Studemire

With it being Black History Month, it was crucial to me to make sure we spotlighted someone from the ME/CFS and Long COVID community who is Black. Being Black and disabled is an entirely different experience. Not only do we deal with ableism, but we also deal with racism, especially medical racism. According to the

Read More »
Scroll to Top