A Year of Exciting Medical Education Achievements

A year ago, we were proud to announce that #MEAction and Mayo Clinic Rochester had won a grant for diagnostic improvement, with Ravindra Ganesh, and Stephanie Grach, and I on the grant as co-investigators. Our project, Improving Diagnostic Accuracy of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Through Implementation of an Enhanced Education Protocol and Care Process Model has so far produced:

  • Updates to the Mayo Clinic public-facing page on ME/CFS
  • A new diagnostic and treatment algorithm for ME/CFS on AskMayoExpert, available to all clinicians in the Mayo system and outside subscribers
  • A successful Concise Clinical Review in Mayo Clinic Proceedings with an associated one-credit continuing medical education (CME) course
  • A longer, video-based CME series, which has been scripted and half of which has already been recorded, along with pre- and post-questions

This year-long project has been fruitful, and has led to additional projects we’ll be excited to announce in the future!

There were many aspects of the work we found especially useful and rewarding.  We were very pleased with the diagrams included in our Concise Clinical Review, Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:

An Altmetric analysis of the Mayo Clinic Proceedings paper. A multicolored circle says "863" inside of it. The name of the paper heads the page. It states that the paper is about 19k of ALL research outputs, #22 of all Mayo Clinic Proceedings papers, and #378 of all outputs of a similar age. On the lefthand side it states it's been mentioned on 7 news outlets, a blog, over 1K tweets, 11 Facebook pages, 4 Wikipedia articles, 3 Redditors, and has been saved on Mendeley 3 times. These stats are already several weeks old, and the citations especially have increased.

The paper has earned an impressive Altmetric score: a measure of how much attention the paper has received!  The Altmetric score is in the high 800s, meaning it is likely one of the most talked-about and shared papers of the year.  It’s in the top 1% of papers of a similar age for shares, and the top 3% in Mayo Clinic Proceedings, which is an extremely prestigious journal.  It’s the #22 paper of all time published in this journal as well.  It’s also been cited in seven news outlets, saved 40 times by Mendeley (people who intend to cite the paper), and has already been cited in another peer-reviewed source!

Presenting at the Society to Improve Diagnosis in Medicine’s Annual Conference

Jaime Seltzer stands in front of a SIDM conference poster backdrop, wearing a pink sweater with a button-down underneath.  She is a white woman with pinned-back dark hair, and is wearing black glasses and a black face mask.With the project complete, I had the privilege to be able to attend and speak this at the Society to Improve Diagnosis in Medicine’s 16th Annual conference, The Future of Diagnosis: Achieving Excellence and Equity in Cleveland, Ohio. I was invited to present the group’s findings and address questions on a panel with other grantees.  #MEAction was also invited to give a talk at the Patient Summit, where I told #MEAction’s remarkable story to an audience of ~400 patient advocates and medical providers.

Alice Tapper, left, wearing a bright yellow sweater and black skirt, sits next to her father, Jake Tapper, on the right, wearing a black suit and a white, button-down shirt. Both sit on a stage and are backed by blue stage curtains.The keynote speaker at the Patient Summit was Jake Tapper, CNN reporter and his daughter, Alice Paul Tapper, who talked about a harrowing near-miss with Alice’s appendicitis, and the effect that being a minor and female-presenting had on her case.  I was impressed by the way Alice articulated what she’d gone through– and also the way her father bounced the ball back to her, to ensure the audience understood it was her story to tell.

The days after the DxQI Grantee presentations and the Patient Summit were filled with fascinating talks from invited experts.  But one of the most interesting aspects of the conference for me were the young researchers, clinicians, and quality improvement specialists who presented their posters at the conference.

A young, white man with red hair and glasses stands next to a poster on a grey board.I was impressed with the level of devotion to their topics, but also how honest they were about what they’d really learned and what they hoped to accomplish with their work.  It was a refreshing mix of earnestness and scholarship, with a strong sense of ethics.  One researcher had been working on someone else’s proprietary program for early detection of sepsis and found that the patented warning system was ineffective.  He explained there were so many false negative warnings that nurses would stop paying any attention to the alert, and that the positives that were correct were already caught by staff, so there was not much use in the system as it was.

It shouldn’t be surprising, though, that a group focused on improving healthcare and health equity turns out to be an interesting and kind group of people.

Next month, I’ll be traveling to Bethesda, where I will give a presentation to the National Institutes of Health (NIH) Symposium for Promoting the Advancement of Research Knowledge in ME/CFS (SPARK ME), a workshop for young and early career investigators who want to pursue research in infection-associated chronic illness.  Thereafter, I’ll be at the associated NIH conference, Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID.

Hope to see some of you there, and looking forward to being able to pass on more news soon!

All of this work was made possible because of this community’s dedication to #MEAction. It is with your financial support that allows me to do this work for the community. If you are able to give this season, I hope you will keep #MEAction in mind– there is more to come and we can’t wait to share our plans for next year!  You can donate now by clicking below:

Jaime Seltzer
Scientific Director, #MEAction


Latest News

blue rectangle image with the NIH logo in the top left hand corner. the words: NIH MECFS Research Roadmap Update Public comments open until March 8th appear in the middle of the image. the meaction logo is in the bottom right hand corner.

NIH ME/CFS Research Roadmap Update–Public Comment Period Now Open

The NIH ME/CFS Research Roadmap public comment period is open now with a deadline of March 8th.  #MEAction is a member of the ME/CFS Research Roadmap Working Group and for the past several months we have been advocating on behalf of this community within this group. Our Executive Director, Laurie Jones, served on the nervous

Read More »
a rectangle image with multiple small hearts in the corners. The words, Valentine's Day Interview with Jamison Hill and Book Promotion. The cover of the book is next to the words. The #MEAction logo at the bottom.

Valentine’s Day Interview with Jamison Hill & Book Promotion

We are excited to bring you a special Valentine’s Day promotion of Jamison Hill’s most recent book, Something’s Wrong with Micah.  #MEAction had the pleasure of having a Twitter chat with Jamison when his memoir When Force Meets Fate came out. We now get to bring this Q&A about his newest book to you. Jamison

Read More »
on a red sparkly rectangle image. The words "#MEAction's Volunteer Program Revamped!" are written in an arcade/game font. Sign-Up Today! The #MEAction logo in the bottom right corner

#MEAction’s Volunteer Program Revamped

Exciting news: #MEAction revamped our volunteer program for the new year! We are honored to have wonderful volunteers including people with ME, Long Covid, and other associated conditions as well as our caregivers, allies, and wider communities. Volunteering with #MEAction can and does make all the difference. We invite you to join our program! Our

Read More »
Scroll to Top