#MEAction Advocates will Speak at Stanford MEDx Conference this Weekend

#MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend about how #MEAction empowers the myalgic encephalomyelitis (ME) community through technology.

Terri and Ryan will discuss the history of #MEAction, its founders, its reason for being, its social justice philosophy, its policy goals, the PACE trial, and the technology it uses to help people fight for change from their beds.  

Watch their presentation about #MEAction via livestream this Sunday, Sept. 22 at 2:30 p.m. PT.*

Ryan Prior will also present on the power of the narrative of illness, touching on his work writing about ME as a journalist for CNN, and the ME documentary he produced, Forgotten Plague. He will also participate on a panel about data sharing in rare diseases. Watch his presentation on Saturday, Sept. 21st at 1:45 p.m. PT.

Terri Wilder will also speak about how her personal experience working on the front lines of the AIDS movement saved her life, and helped her fight for the right kind of care when she got sick with ME. Watch her presentation on Saturday, Sept. 21st at 9:35 a.m. PT.

Stanford University hosts its annual Medicine X conference every September to bring together community stakeholders, innovators and leaders in health care. This year’s Medicine X | Change conference is focused on the innovators who are disrupting health care throughout the globe.

*With a complex schedule of main stage, breakout sessions, and subsessions, we are not quite sure what you can catch on livestream but all the sessions look interesting. We provided the times of Ryan and Terri’s presentations just in case! 

 [maxbutton id=”17″ url=”https://livestream.com/stanfordmedicinex” text=”Watch the Livestream” ]

Facebook
Twitter
WhatsApp
Email

1 thought on “#MEAction Advocates will Speak at Stanford MEDx Conference this Weekend”

Comments are closed.

Latest News

white rectangle with red splashes of tiny red dots in all four corners. #MEAction logo at the top. #MEAction Minnesota Helps Save Long Covid Program in red font.

Minnesota’s Long COVID Funding Saved from Elimination

We have good news! The first-in-the-nation Long COVID program run by the Minnesota Department of Health (MDH) has been saved from elimination! This means #MEAction will be able to continue its work helping Minnesotans with ME/CFS, Long COVID and related conditions access vital home and community-based support services, as part of our multi-year grant.   Last

Read More »

Millions Missing Scotland 2025 raises a red alert

On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh. The rally sent a clear and urgent message to the Scottish Government to act on the £4.5 million pledged in the 2025-26 budget for specialist support for ME, Long Covid, and other similar conditions. This year’s theme, ‘Red

Read More »

Research Roadmap Petition

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Read More »
Scroll to Top